Thomas933
Active member
- Joined
- Dec 4, 2018
- Messages
- 91
- Reason
- CALS
- Diagnosis
- 12/2018
- Country
- Uni
- State
- RI
- City
- Providence
Hello: My husband was diagnosed this past Dec. He has limb (legs and arms) onset. He is still working and driving. But...he sleeps a lot. Like almost all the time when he is not at work.
I'm just trying to be patient with it and I know extreme fatigue is part of this awful disease. I also know that he may be trying to escape a bit which is also fine however...it's hard to watch him sleep this precious time away. I feel like we have limited days and he is sleeping through them.
Tell me I am being a jerk and should leave him alone to rest. I know I should it's just hard.
I'm just trying to be patient with it and I know extreme fatigue is part of this awful disease. I also know that he may be trying to escape a bit which is also fine however...it's hard to watch him sleep this precious time away. I feel like we have limited days and he is sleeping through them.
Tell me I am being a jerk and should leave him alone to rest. I know I should it's just hard.