billyd
Active member
- Joined
- Oct 11, 2007
- Messages
- 47
- Reason
- Learn about ALS
- Country
- US
- State
- New Jersey
- City
- Dennisville
Well now have had a sleep study, Not much of a study as the first two hours could not fall asleep so they allowed some zanax which got me four hours. No one rushed in with a oxygen bottle or mask so I guess there was no emergency in that 4 hours.
So I have gone from a "you don't have als" verdict from Pa. hospital to a visit to drexel next week as no one seems to have a plan or idea about my progressing symptoms, not that I am looking for bad news but I am ill and I know my body. I think the cruelest part is having someone make a bold statement about your condition and then family members believe it is all anxiety. I do know I am not sleeping, have some difficulty swallowing, have cramps in both legs and shoulders, weight loss and now pain in the sacral region of lower back. It doesn't feel like happy holidays to me. Sorry to bring anyone down but am feeling pretty miserable right now.
So I have gone from a "you don't have als" verdict from Pa. hospital to a visit to drexel next week as no one seems to have a plan or idea about my progressing symptoms, not that I am looking for bad news but I am ill and I know my body. I think the cruelest part is having someone make a bold statement about your condition and then family members believe it is all anxiety. I do know I am not sleeping, have some difficulty swallowing, have cramps in both legs and shoulders, weight loss and now pain in the sacral region of lower back. It doesn't feel like happy holidays to me. Sorry to bring anyone down but am feeling pretty miserable right now.