Siri
New member
- Joined
- Jun 20, 2021
- Messages
- 3
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- DK
- City
- Copenhagen
Hi everyone and I’m sorry I haven’t replied to all your messages although I greatly appreciate your thoughts, experiences and input.
i continued as my mum’s full time caregiver. We never found a solution for her neck/neck collar unfortunately. She passed away last night after having been given the diagnoses a little over 2 years ago. I am absolutely devastated and I’m having a hard time managing all my grief. I know it’ll get better in time, but although my mum was ready to go, I don’t think a child can ever fully prepare to lose his or her mum. Her symptoms worsened very quickly and very much the last few days. She went from being able to hand-write and walk, wipe herself (from the front atleast) to not wanting to communicate at all and only being able to take 10 steps supported by me and a nurse. So I knew it was time. She suffered a great deal respiratory wise and she refused respiratory aid. In the end she was given a little bit of morphine to ease her tightness around the chest as she was struggling. I held her hand and stroked her cheek as she took her last breath. I told her how much I love her and how grateful I have been to have her as my mother. It was beautifully sad and something I will never forget. I’m gonna miss her so so so much as she was the most wonderful, funny and beautiful woman and mother.
My heart truly aches for everyone affected by ALS - I simply cannot comprehend the cruelty of it. I think I’m gonna need counselling and I’ll seek it as soon as I have prepared her funeral and all the other boring stuff that comes with death - atleast she didn’t have to worry about that.
i continued as my mum’s full time caregiver. We never found a solution for her neck/neck collar unfortunately. She passed away last night after having been given the diagnoses a little over 2 years ago. I am absolutely devastated and I’m having a hard time managing all my grief. I know it’ll get better in time, but although my mum was ready to go, I don’t think a child can ever fully prepare to lose his or her mum. Her symptoms worsened very quickly and very much the last few days. She went from being able to hand-write and walk, wipe herself (from the front atleast) to not wanting to communicate at all and only being able to take 10 steps supported by me and a nurse. So I knew it was time. She suffered a great deal respiratory wise and she refused respiratory aid. In the end she was given a little bit of morphine to ease her tightness around the chest as she was struggling. I held her hand and stroked her cheek as she took her last breath. I told her how much I love her and how grateful I have been to have her as my mother. It was beautifully sad and something I will never forget. I’m gonna miss her so so so much as she was the most wonderful, funny and beautiful woman and mother.
My heart truly aches for everyone affected by ALS - I simply cannot comprehend the cruelty of it. I think I’m gonna need counselling and I’ll seek it as soon as I have prepared her funeral and all the other boring stuff that comes with death - atleast she didn’t have to worry about that.