Kmbertrand
New member
- Joined
- Aug 8, 2018
- Messages
- 6
- Reason
- Loved one DX
- Country
- CA
- State
- Ontario
- City
- Ottawa
Hi everyone, thanks for taking the time to read.
I posted a couple weeks ago about my mom who is progressing rapidly.
She is continuing to progress after her diagnosis on August 24. Most of her words are not audible now and she is getting weaker with transfers from bed to chair etc and is now only eating pudding textured foods.
She spends more time napping on her bipap during the day.
She had been prescribed Rilutek after the diagnosis and the dr talked to her about a feeding tube.
She had felt in her current state she didn’t want to slow things down and felt she couldn’t handle the gtube insertion.
I’m struggling with the fact that I didn’t press her to agree to the feeding tube. We have moved into hospice to help keep her comfortable and to have help with her care so I can spend more time being her daughter and less time being her nurse.
I’m wondering if anyone has made the same types of decisions to not have any interventions or try to slow things down. We are trying to focus on quality of time instead of quantity but I can’t help feeling sad that we didn’t give it a big fight.
Any thoughts would be so appreciated!
I posted a couple weeks ago about my mom who is progressing rapidly.
She is continuing to progress after her diagnosis on August 24. Most of her words are not audible now and she is getting weaker with transfers from bed to chair etc and is now only eating pudding textured foods.
She spends more time napping on her bipap during the day.
She had been prescribed Rilutek after the diagnosis and the dr talked to her about a feeding tube.
She had felt in her current state she didn’t want to slow things down and felt she couldn’t handle the gtube insertion.
I’m struggling with the fact that I didn’t press her to agree to the feeding tube. We have moved into hospice to help keep her comfortable and to have help with her care so I can spend more time being her daughter and less time being her nurse.
I’m wondering if anyone has made the same types of decisions to not have any interventions or try to slow things down. We are trying to focus on quality of time instead of quantity but I can’t help feeling sad that we didn’t give it a big fight.
Any thoughts would be so appreciated!