rhonda and bill
along with spasms ,stiffness and balance issues fatigue was right there up on the list from the start.
early on in my illness i could be bedridden for a week or more and not have energy to move,everyone thought it was ms due to this as after a severe faitgue episode my neuro function would decline.
i dont have those episodes anymore just general fatigue,fatigue is bad news and indicates neurological trauma.
i have learnt to manage this by doing what i can and need to do,but knowing when to rest.
rhonda your progression is similar to mine,starting waist down and working up to npow bulbar symptoms. i have had mnd 9yrs.
bill,i have said in the past the fatigue is worse than the pain(believe me,i know what major pain is) but at least you can move and try to function with pain,were as with severe fatigue no amount of will power helps.