lillyy
New member
- Joined
- Oct 20, 2018
- Messages
- 6
- Reason
- Learn about ALS
- Country
- RO
- State
- -
- City
- Bucharest
Hi, I have read the thread with the symptoms and I wouldn’t have posted here, if it weren’t for my knees that are kinda bothering me – some vibrations, not exactly twitching which probably wouldn’t scare me because I would say the cold is to blame ( I sleep in just a shirt and it is kinda cold here at night), if it wasn’t for my thumb twitching (first symptom) which now is mostly gone if I don’t get anxious or nervous . I am also so scared with my symptoms that I just need to tell somebody because not wanting to scare my parents I have internalized everything and I haven’t told a single soul how scared I am or what happens with me - which might have actually worsened my twitching. I am going to try to be as honest as possible below.
Please ignore me if you believe that I’m just a crazy person, I might well be at this point.
Family history: nobody had als, but there are some diabetes cases – my paternal grandfather and arthritis – my mother.
Sometimes I also get tinglings on my fingertips and just like on my soles there’s some kind of vibrating especially when sweaty.
OTHER symptoms which might be unrelated: I’ve had diarrhea a couple of days after the first twitching started – (might be a reverse reaction to Magne B6?) and I might have had a cold (runny nose, sneezing – here is sometimes pretty cold), and now I experience some sweaty palms and at night I sweat more than before. I’ve also lost some weight – nothing major but I don’t know, now I am worried.
1. I am a 28 and 5 months years old female. I know that when you’re u30 it’s unlikely to get diagnosed with this, but I am scared because 28 and almost a ½ isn’t that far away from 30.
2. My story with my right-hand thumb twitching started last Thursday at 11 pm. I’ve never had twitches that would start when going to sleep and then feel them again when waking up. I usually don’t get twitches at all. So, when I woke up Wednesday morning and felt it I started freaking out. Which made my thumb twitch quicker and with a greater intensity.
I started googling, and Parkinson and als popped out first. I started freaking out again.
After that I took a MAGNE B6 flask – not sure if that’s the term in English. At night my left-hand thumb also twitched a couple of times and I started freaking out even worse. Thursday morning I was already better – the frequency was down with approx 70% and the intensity was down with 90%. I was feeling more confident, I took another flask of MAgne B6 in the morning and afternoon. The thing is, that even tho the frequency was way down and the intensity really low, I started asking myself why doesn’t it go away completely and I am became anxious again.
3. I want to mention that at night I can feel lonesome twitches, sometimes in my bicep, sometimes in my calf, but those are singular occurrences.
4. Why I got even more scared is that Friday, some more regular twitches/vibrating started in my toes, both feet or soles. Here, I am not sure if that happened before or after taking a hot bath. Point is that the thumb twitches stopped and currently I activate that when I am really nervous/anxious.
5. Another thing that scares me is that I also feel some vibrating in the Knees.
There are 5 days since all this started, so I’m not sure how relevant is the fact that not much has changed.
My twitching happens when at rest. My voice hasn’t changed, I have no difficulties talking or swallowing (not entirely sure what this entails, but I can swallow just like before) my parents and brother haven’t noticed something different except for my bad mood – and that’s because like I have already mentioned I have internalized all the scare and fear. I can walk normally, jump, stand on my toes, heels, walk on a narrow margin – but like I’ve explained below I do feel some twitchings/vibrations in my soles or toes and some vibrating in my knees which is the most scary part for me and has me going nuts. I don’t think I’ve lost strength – I can do everything without straining. I also don’t think I get tired easily.
Before the twitching started –
The day before the twitching of my thumb started my cat bit me right on the twitching thumb. I have also filled a couple of days a pot with water using the thumb to hold it. I am always pressing a button with my thumb. My twitching started after holding an old iphone phone that weights 150 grams. So if I didn’t feel any other twitches I would’ve said it’s just a strain.I also drink pepsi instead of water and I did drink some before all this started.
Like I said, my knees are now the reason of me freaking out. Could it be just the cold ?
If anyone had the patience to read this thank you!
Please ignore me if you believe that I’m just a crazy person, I might well be at this point.
Family history: nobody had als, but there are some diabetes cases – my paternal grandfather and arthritis – my mother.
Sometimes I also get tinglings on my fingertips and just like on my soles there’s some kind of vibrating especially when sweaty.
OTHER symptoms which might be unrelated: I’ve had diarrhea a couple of days after the first twitching started – (might be a reverse reaction to Magne B6?) and I might have had a cold (runny nose, sneezing – here is sometimes pretty cold), and now I experience some sweaty palms and at night I sweat more than before. I’ve also lost some weight – nothing major but I don’t know, now I am worried.
1. I am a 28 and 5 months years old female. I know that when you’re u30 it’s unlikely to get diagnosed with this, but I am scared because 28 and almost a ½ isn’t that far away from 30.
2. My story with my right-hand thumb twitching started last Thursday at 11 pm. I’ve never had twitches that would start when going to sleep and then feel them again when waking up. I usually don’t get twitches at all. So, when I woke up Wednesday morning and felt it I started freaking out. Which made my thumb twitch quicker and with a greater intensity.
I started googling, and Parkinson and als popped out first. I started freaking out again.
After that I took a MAGNE B6 flask – not sure if that’s the term in English. At night my left-hand thumb also twitched a couple of times and I started freaking out even worse. Thursday morning I was already better – the frequency was down with approx 70% and the intensity was down with 90%. I was feeling more confident, I took another flask of MAgne B6 in the morning and afternoon. The thing is, that even tho the frequency was way down and the intensity really low, I started asking myself why doesn’t it go away completely and I am became anxious again.
3. I want to mention that at night I can feel lonesome twitches, sometimes in my bicep, sometimes in my calf, but those are singular occurrences.
4. Why I got even more scared is that Friday, some more regular twitches/vibrating started in my toes, both feet or soles. Here, I am not sure if that happened before or after taking a hot bath. Point is that the thumb twitches stopped and currently I activate that when I am really nervous/anxious.
5. Another thing that scares me is that I also feel some vibrating in the Knees.
There are 5 days since all this started, so I’m not sure how relevant is the fact that not much has changed.
My twitching happens when at rest. My voice hasn’t changed, I have no difficulties talking or swallowing (not entirely sure what this entails, but I can swallow just like before) my parents and brother haven’t noticed something different except for my bad mood – and that’s because like I have already mentioned I have internalized all the scare and fear. I can walk normally, jump, stand on my toes, heels, walk on a narrow margin – but like I’ve explained below I do feel some twitchings/vibrations in my soles or toes and some vibrating in my knees which is the most scary part for me and has me going nuts. I don’t think I’ve lost strength – I can do everything without straining. I also don’t think I get tired easily.
Before the twitching started –
The day before the twitching of my thumb started my cat bit me right on the twitching thumb. I have also filled a couple of days a pot with water using the thumb to hold it. I am always pressing a button with my thumb. My twitching started after holding an old iphone phone that weights 150 grams. So if I didn’t feel any other twitches I would’ve said it’s just a strain.I also drink pepsi instead of water and I did drink some before all this started.
Like I said, my knees are now the reason of me freaking out. Could it be just the cold ?
If anyone had the patience to read this thank you!