Ren95
New member
- Joined
- Sep 24, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hi all
Would appreciate any opinions here.
I'm a 26/F, no familial history of ALS.
Last June, I noticed my toes twitching inwards on their own, and this triggered some anxiety. I spoke to my Dr, and they said they didn't know the cause, but if I was otherwise okay, they were sure it was fine. In December, I started to get twitches in my legs, both in the calf and above the knee. These weren't constant, but happened every 10 mins or so. Yet again, went to see my GP and she was very flippant about my fears, and said if it was ALS then there's nothing I can do, but she sees no need at that point for additional testing.
In May this year, I started getting some twitching in my upper arms, and also some slight pain, as if they were tired all the time. I've been referred to an orthopedic consultant, but there's a 9 month waiting list. Had my reflexes and strength tested at the time and Dr wasn't worried.
I've now started getting some twitches in my temple area, and I just don't know what to do anymore.
I've had the occasional Charley horse, maybe 5 in the past year, but I'm just really worried this is all connected, and whilst I know people say twitches usually come after failure, I'm just wondering if anyone thinks I should push to have an EMG etc, or if it sounds at all worrying, or if there's anything I should check out to put this to bed? I'm obviously very anxious, but I'm anxious because of the symptoms, not getting symptoms because I'm anxious, if that makes sense.
Thank you for any help.
Would appreciate any opinions here.
I'm a 26/F, no familial history of ALS.
Last June, I noticed my toes twitching inwards on their own, and this triggered some anxiety. I spoke to my Dr, and they said they didn't know the cause, but if I was otherwise okay, they were sure it was fine. In December, I started to get twitches in my legs, both in the calf and above the knee. These weren't constant, but happened every 10 mins or so. Yet again, went to see my GP and she was very flippant about my fears, and said if it was ALS then there's nothing I can do, but she sees no need at that point for additional testing.
In May this year, I started getting some twitching in my upper arms, and also some slight pain, as if they were tired all the time. I've been referred to an orthopedic consultant, but there's a 9 month waiting list. Had my reflexes and strength tested at the time and Dr wasn't worried.
I've now started getting some twitches in my temple area, and I just don't know what to do anymore.
I've had the occasional Charley horse, maybe 5 in the past year, but I'm just really worried this is all connected, and whilst I know people say twitches usually come after failure, I'm just wondering if anyone thinks I should push to have an EMG etc, or if it sounds at all worrying, or if there's anything I should check out to put this to bed? I'm obviously very anxious, but I'm anxious because of the symptoms, not getting symptoms because I'm anxious, if that makes sense.
Thank you for any help.