- Aug 11, 2007
I have not been diagnosed but i have progression and will be seeing my neuro on the 25th. We are regular visitors about once a month! Anyways most of you know me i have been around for a year. My question is to the PALS or anyone who wants to give their opinion. I live ten miles from the coast in a small town in North Carolina. I grew up in northern N.Y. and that is where my grandmother, aunts, uncles, cousins etc still live. My mother and brother live down here in N.C. My mother works and so does my brother. My husband works way too hard and we still cant make it. We were doing so well for ourselves, i was going to school, working, getting more education for more pay etc. We had our children here and have raised them here. My oldest will be in middle school soon. I fear there will come a time where i will need to have a lot of help and family around me. I call the south my home and i love my house, we worked hard for it. I love the weather the ocean everything! Where i am from it is beautiful but extremely cold, -40 with wind chill in the winter. The only thing is that is where all my family is. My husband is going to need help and my kids will need support from grandma's and cousins. There are a lot of relatives up there that are retired or stay at home mom's who can come visit or help when the time comes. I dont want to wait until i am so bad i need the help because my kids would be changing schools probably in high school. Housing is cheaper up there but my husband is not gauranteed a job. If you were diagnosed with ALS what would you do?