Peter_Sav
New member
- Joined
- Nov 18, 2021
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- GR
- State
- AT
- City
- Athens
Hello and thank you for your time. I am a 28 year old male living in Greece. About four years ago I had a really sudden onset of leg weakness, like I woke up and my legs were really sluggish like a day or two.
Due to my age I was not really worried about it. However, shortly after that my right hand started twitching, the area between thumb and index and a few days later I noticed some atrophy in that area so I panicked ( current pictures of my hand below).
Aside from my hand twitching, my right shoulder blade was twitching as well no stop for a few days also.
I went to a neurologist and she said I was fine, did an emg and some tests and I was dismissed.
Now, the thing that scares me the most is the Dysphagia I developed a year after. Drinking water became hard and I was choking pretty often also eating bread was nearly impossible and still is.
I arranged another appointment with an expertise in neuromuscular diseases and I hope for the best.
Anyone with some experience about the disease? I read about the split hand and i have to say it looks very similar to mine also my dysphagia really drives me into panic mode.
Again thank you for your time.
Due to my age I was not really worried about it. However, shortly after that my right hand started twitching, the area between thumb and index and a few days later I noticed some atrophy in that area so I panicked ( current pictures of my hand below).
Aside from my hand twitching, my right shoulder blade was twitching as well no stop for a few days also.
I went to a neurologist and she said I was fine, did an emg and some tests and I was dismissed.
Now, the thing that scares me the most is the Dysphagia I developed a year after. Drinking water became hard and I was choking pretty often also eating bread was nearly impossible and still is.
I arranged another appointment with an expertise in neuromuscular diseases and I hope for the best.
Anyone with some experience about the disease? I read about the split hand and i have to say it looks very similar to mine also my dysphagia really drives me into panic mode.
Again thank you for your time.