So much I read in just a few short lines that hit me really hard.
My husband started falling down a few years ago. They forced him off of his job. His legs grew weak but the doctor said it had to be in 3 of 4 limbs before it could be called ALS or MS. The last EMG showed it is now in both arms. His legs are withered and the tendons jut out when he tries to lift his leg. He spends most of his time in a wheel chair. They just did a biopsy taking a section of muscle from the left are, calf and removed a nerve from his foot.
I don't know what all to expect but I am afraid and I really need someone to talk to. I don't know what to look for, signs to watch for. His hands are starting to shake.
How does one go through this? I think I am failing at every turn to experience the right reactions. The things that go through my mind make me think I do not know who I really am anymore.
Is there anyone I can talk to who understands
My husband started falling down a few years ago. They forced him off of his job. His legs grew weak but the doctor said it had to be in 3 of 4 limbs before it could be called ALS or MS. The last EMG showed it is now in both arms. His legs are withered and the tendons jut out when he tries to lift his leg. He spends most of his time in a wheel chair. They just did a biopsy taking a section of muscle from the left are, calf and removed a nerve from his foot.
I don't know what all to expect but I am afraid and I really need someone to talk to. I don't know what to look for, signs to watch for. His hands are starting to shake.
How does one go through this? I think I am failing at every turn to experience the right reactions. The things that go through my mind make me think I do not know who I really am anymore.
Is there anyone I can talk to who understands