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  • Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here
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Roger4143

Forum Supporter
Member
Joined
Jul 1, 2017
Messages
21
Reason
Lost a loved one
Diagnosis
05/2017
Country
US
State
TX
My Pals started a downward spiral 30 days ago. Could no longer talk, appetite diminished, slept 14-15 hours at night and often a long nap in the afternoon. I asked twice if she wanted our granddaughters to come decorate for Christmas and never got a response. I had them cone out anyway and she watched and was pleased with their efforts.

Suddenly Christmas became a priority — and a goal. When are you going to put up the tree - we did right away. Put it where I can see it because this will be my last Christmas. When are you going to show me the picture for the card? Yikes, scramble, scramble. She liked the picture, leading the ALS walk in October with all her team members crowding behind her.

I want to go shopping. Ok. Caregiver and I loaded her up in van, wrapped in a blanket and went as directed to Penney’s, Lifeway, and TJ Max. She directed through letter chart and she bought 30 gifts for friends. Mission accomplished. Our daughter bagged in gift bags and I delivered.

She continued to decline. That awful constipation then diarrhea. Started waking up and looking at me with wide beautiful eyes. I held her hand and prayed for her. Hospice more involved starting December 22. Finally gave her benedryl, lorazepam, halopiderm and morphine on December 25. She left this life on her own terms at 10pm.

Been a whirlwind of planning since the. Daughters and granddaughters immensely helpful. I think I will send everyone home soon and start staring this monster in the face. Blessed with 54 years of marriage to my high school sweetheart. This forum was another blessing. Thanks for your help!
 
Last edited by a moderator:

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,214
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
My deepest condolences. Thank you for making her last days so special and helping her accomplish her goals.

You were an awesome care partner.

Peace and comfort to you and your family as she flies free
 

Narrowminded

Very helpful member
Joined
Apr 30, 2016
Messages
2,309
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
Roger I am so very sorry for your loss. You were a wonderful CALS, doing everything she asked for in her last days. So beautiful.

Hugs and peace to you as you move forward.
 

Jlynn

Distinguished member
Joined
Mar 16, 2016
Messages
385
Reason
Lost a loved one
Diagnosis
12/2015
Country
US
State
NH
What a lucky lady your PALS was to have you. I'm so very sorry for your loss. Sending you a huge hug.
 

Wilson2009

Distinguished member
Joined
May 4, 2017
Messages
139
Reason
PALS
Diagnosis
01/2017
Country
US
State
KS
So sorry for your loss. Our thoughts are with you and your family.
 

dldugan

Distinguished member
Joined
Oct 5, 2018
Messages
203
Reason
PALS
Diagnosis
09/2018
Country
US
State
illinois
Condolences, sorry for your loss.
 

KateEmerson

Distinguished member
Joined
Apr 23, 2016
Messages
420
Reason
Lost a loved one
Diagnosis
09/2013
Country
US
State
MA
So sorry for the loss of your wife Roger. What a wonderful goodbye gift you gave her . Sending you thoughts of comfort and peace, Kate
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
1,785
Reason
PALS
Diagnosis
07/2017
Country
US
State
Oregon
What a beautiful tribute. I’m glad she got to have a memorable Christmas experience with family. May she rest in peace.
 

Angiegal

Distinguished member
Joined
Feb 15, 2017
Messages
301
Reason
PALS
Diagnosis
09/2015
Country
CA
State
Ontario
So very sorry for your loss

AngIe
 

Katalin

Distinguished member
Joined
Sep 22, 2018
Messages
114
Reason
Lost a loved one
Diagnosis
05/2018
Country
CA
State
Ontario
Roger, condolences to you and your family and friends. So sorry for the loss of your sweetheart!
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,240
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
I'm so glad that she was able to do her last Christmas her way, Roger, with all of your help. And I'm sure those 30 gifts mean much more to their recipients than their face value. Wishing you and your family much peace and strength.

Best,
Laurie
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,194
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
Roger,

What a wonderful gift you gave your sweetheart during the last month of her life.

You and your family are in my thoughts and prayers for comfort.
 

soonerwife

Very helpful member
Joined
Mar 16, 2016
Messages
1,514
Reason
Lost a loved one
Diagnosis
10/2015
Country
US
State
Oklahoma
So sorry for your loss! I love that she did it her way! May peace be with you and your family!
 

adrivtham

Distinguished member
Joined
Feb 23, 2016
Messages
116
Reason
Lost a loved one
Diagnosis
02/2016
Country
US
State
texas
I am so sorry for your loss. Big Hug
 

chally

Very helpful member
Joined
Apr 23, 2015
Messages
1,255
Reason
PALS
Diagnosis
02/2015
Country
US
State
wv.
What a beautiful Christmas experience

She definitely did it her way, flying free
 
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