gidget1
New member
- Joined
- Jul 15, 2011
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 10/2010
- Country
- CA
- State
- Ca
- City
- San Diego
This is my very first post i'm still new to this all don't even know where to begin. But i need some advise, help and answers on behalf of my brother who has ALS (bulbar). I'm still learning myself about all this and the different lingo (talk) that comes with his disease. And his condition is worsening by the day its hard to get answers or questions to him these last few days he's been really drugged up. I try to go to his doctor appointments but i find myself confused about what they aretalking about. I myself am not sure what to ask. So bare with me, please. just want to know what is going on with my brother for the last few days he's been waking up experiencing some tremors like if he was cold teeth chatter his body stiffen and it will last anywhere from 5 mins to 30 mins has been the longest. took him into the doctors and they said it could be rikers but not sure, they ran test for infections they could not find any infections anywhere no temperture but he does get slightly clammy. I just want to know if others have experience this. It started off just in the morning but it has been more frequent through out the day maybe 2-4 time during the day as well. What can i do while he is going through this to help him feel more comfortable.