Jselliott07
Active member
- Joined
- Nov 26, 2019
- Messages
- 45
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- IA
Hi there. I’ve been off for a bit but I chatted with my doc and had a question. My other thread was closed and I’m not sure how to merge the two.
I am 34 and have had issues that have kept worsening. I have one sided back atrophy and now wrist and shoulder atrophy. When I try to engage they shake uncontrollably. Even holding a hug, leaning resting on my arms, trying to flex, any movements and my muscles shake uncontrollably and give out. (My arms, mainly bicep/tricep more so than others) My doc said my emg a year ago was ok but all the other symptoms point to something sinister, making it all very confusing. He said he’s unsure of what its going on and with what’s happening with the progression of what I’ve been dealing with it makes it concerning. Has anyone else had the uncontrollable muscle shaking (aside from fasciculations, I still have those all over non stop as well.) And I’m thinking now is a time for a second opinion. Where are some knowledgeable places to go?
Thank you in advance for taking the time to read this. My family is a great support and we’re trying to see what we can do, we just don’t know best places to turn at this point.
I am 34 and have had issues that have kept worsening. I have one sided back atrophy and now wrist and shoulder atrophy. When I try to engage they shake uncontrollably. Even holding a hug, leaning resting on my arms, trying to flex, any movements and my muscles shake uncontrollably and give out. (My arms, mainly bicep/tricep more so than others) My doc said my emg a year ago was ok but all the other symptoms point to something sinister, making it all very confusing. He said he’s unsure of what its going on and with what’s happening with the progression of what I’ve been dealing with it makes it concerning. Has anyone else had the uncontrollable muscle shaking (aside from fasciculations, I still have those all over non stop as well.) And I’m thinking now is a time for a second opinion. Where are some knowledgeable places to go?
Thank you in advance for taking the time to read this. My family is a great support and we’re trying to see what we can do, we just don’t know best places to turn at this point.