freddiesnetty
Distinguished member
- Joined
- Nov 2, 2007
- Messages
- 241
- Diagnosis
- 12/2006
- Country
- US
- State
- Tx
- City
- Houston
This is probably a strange question, and I am almost embarrassed to ask. My husband is in the late stages of als, his symptons first onset in 2003 after falling off of a stage, He is a popular musician, He was diagnosed in 2006, He has lost around 100lbs. His breathing is at 17%. I don't know how accurate this is because when he went to clinic (He HATES it) he really didn't even try to blow in the machine, he hates clinic because he feels like when he goes for checkups they are so suprised to see him again and to tell you the truth, it is very depressing for both of us...He still wants to have sex regurally. I am concerned that this is not healthy for him, He uses his bi-pap constantly. I don't mind but I AM concerned about the strenuous activity for him....I am wondering about this from other folks but was toooo embarrassed to ask....Any feedback?




