- Joined
- Aug 28, 2013
- Messages
- 2,932
- Reason
- PALS
- Diagnosis
- 12/2018
- Country
- US
- State
- NC
- City
- Get Real
I’ve been in the hospital (first step down from ICU) in the NeuroScience
Department for 7 days for a severe a headache. So bad I was incapacitated
I had to be taken the hospital by ambulance.
I had brain fluid leak which stopped on the third day in the hospital which
changed the approach. The headache persisted so they put me on morphine
intravenously every three hours along with what they called a “cocktail”l
of three additional pain suppressors.
Long story shortened… they did two Occipital Nerve Block shots in the
back of my head. They told me it was going to uncomfortable ( which
really means you’ll remember it for a long time ) It was but they felt
it was the last resort sort of some kind of dangerous surgery which
would require ventilator and with my ALS it would have to stay. My
directive I chose not to.
Well.... the Occipital Nerve Bock shots worked. The pain of the shots
was worth it. I was lucky.
Gotta note this, reviewing all the Could This Be ALS I missed I did noticed of
all the 20, 30 and early 40 year old trolls… none of them were closed but some
got 12, 18 and 22 replies. Not once was a referral of how rare it is to be
diagnosed with ALS in those age groups. Maybe I’ve missed it… it is
not rare in those age groups anymore.
Anyway I’m home recovering but… I tried hard to stay mobile with my
rollator but this event took a toll on my legs being in bed ( one of the beds if you
try to get out of an alarm goes off ) for 7 days so its on to the PWC.
But.... glad to be home.
Department for 7 days for a severe a headache. So bad I was incapacitated
I had to be taken the hospital by ambulance.
I had brain fluid leak which stopped on the third day in the hospital which
changed the approach. The headache persisted so they put me on morphine
intravenously every three hours along with what they called a “cocktail”l
of three additional pain suppressors.
Long story shortened… they did two Occipital Nerve Block shots in the
back of my head. They told me it was going to uncomfortable ( which
really means you’ll remember it for a long time ) It was but they felt
it was the last resort sort of some kind of dangerous surgery which
would require ventilator and with my ALS it would have to stay. My
directive I chose not to.
Well.... the Occipital Nerve Bock shots worked. The pain of the shots
was worth it. I was lucky.
Gotta note this, reviewing all the Could This Be ALS I missed I did noticed of
all the 20, 30 and early 40 year old trolls… none of them were closed but some
got 12, 18 and 22 replies. Not once was a referral of how rare it is to be
diagnosed with ALS in those age groups. Maybe I’ve missed it… it is
not rare in those age groups anymore.
Anyway I’m home recovering but… I tried hard to stay mobile with my
rollator but this event took a toll on my legs being in bed ( one of the beds if you
try to get out of an alarm goes off ) for 7 days so its on to the PWC.
But.... glad to be home.