- Apr 7, 2007
So My dear friend continues to deteriorate with ALS. He is our school principal whome many of us adore for his vision and guidance. I am quite close to him and his wife - doing everything I can to simplify their lives - I don't want to lose my mentor's leadership any sooner than I have to. I do believe that by running our high school, he continues to focus his energy on something other than his physical struggles. He also guides all who surround him - kids and adults- realize a very different perspective on life. He is now using a conversion van and tomorrow will be his first day in school with his fitted chair. He tires quickly, his lung capacity is quite low. I want him to stay as long as he physically can, but wonder if I am pushing him to do something that he is ready to let go of but I think the school leadership gives him a reason to get up every morning. I have read other PALS who post regarding "Pain" factors that do not go away... he has not shared this kind of symptom - though I know cramps continue to take turns throughout his body....He just has so much to offer, and I don't want to see him go- am I being selfish - to urge him to stay? I am fully willing to drive him to work & home when he no longer can transfer - He seems to enjoy his job - dispite the petty discussions he must confront... My hope is by his continued involvement, he will slow the progress of ALS.