Self Guilt over ALS

[MtPockets]

There is an old saying when you "assume" anything, you make an ass out of you and me. ASS U ME. I know it's crude, but I find it very hard in this day and age that any certified Neurologist is going to tell you that a hit on your head caused you to develop ALS in just a few weeks or months. IT DOES NOT HAPPEN, MUCH LESS IN A COUPLE OF MONTHS.

At the very least I would go to an ALS clinic where Docotrs who deal with ALS patients every day have the expertise to test you and see if you even have the disease.

If you do,,,,,,How can you be so selfish as to ignore any family and loved ones and their needs during such a time as this. You have never discussed them on the forum. Why? ALL you keep saying is, me, I, Is that the focus of your life?

Or maybe you are just here to pull our chains and see how far we will jump. I don't know about you man. You have gotten answers from us about all your questions and keep on with the same questions as if you want to justify being miserable or something. What is your REAL problem. Why are you here.

Capt AL

Let's assume that my head bang has led me to developing ALS. It's not proven and it can never me proven, but let's assume that head trauma leads to ALS for argument sake.

My question is: if you were in my shoes, or you actually had a head trauma, and subsequently developed ALS and your neuro told you that you have caused the ALS upon yourself by being careless, ignorant, whatever...

 

[Peg B]

Dear Troy,

For the record, I am giving you my last response on this issue. Go to an ALS clinic as Captain Al said. And seek psychiatric help for this obsession that makes no sense and is doing no one, especially you, any good. Sincerely, Peg

 

[brooksea]

I don't even know if I should reply because you are really making me...a...I guess...angry!

TROY GET A GRIP!

Can you explain to me why my mother has fallen approx. 30 times in the past year, and recently bashed her head on the bedside table ( and I mean really bad ), yet she has no neurological probs? I know, cuz i took her to get the tests.

Trauma could possibly contribute to the onset of ALS if you perhaps (and researchers don't know) are predispositioned by some genetic makeup.

Is this the only trauma you have ever gone through?

If so, you must have a very fragile body.

Let me tell you a story about a man named Don,
the poor old soul couldn't get his job done.
He went up a tree with a chain saw in hand,
next thing you now he was thinking he was dead!
Low and behold the neighbor was a doc
took him to surgery made sure he didn't lose his co*k!
Later down the road Don married him a girl,
then he felt sure he could conquer all the world!
Next thing you know he broke his two feet,
landed on his head but didn't skip a beat.
Then shortly later he spiral broke the leg,
well that didn't stop him til he really had to gag!

Couldn't swallow dear..... not even tea!


( OK I don't want any of you critiquing me on the take off on Beverly Hillbillies song )


The above is my husband's experience over many years, because he is a damned clutz. so just a simple slip and fall and bang of the head is really far fetched and if your neuro told you that the he needs to be flogged!


What I'm trying to say is all of this trauma happened to my husband over lots of years and last year he was diagnosed with ALS. You just can't slip and fall and suddenly get "ALS."

You could've had ALS and didn't realize it when you were so clumsy! Just like my husband!

 

[Pythia]

... I am sorry ... this is really not my fault ... I might have gone a bit too far ... It was my speculation ... I tried ... I probably should have said ....

I really feel the guilt .... I hate myself ...if I could forgive myself .... I remember sympathising ...

I probably should have ...Just when things look so good...Thing could not have been better........

*************************
Troy,

Please look at the selected words taken from your post above. Go to your wife or a trusted friend and start a sentence with each of these phrases. Be honest with yourself - let out your anger, frustration, and rage. I hope that if you can acknowledge some things really are not your fault and others may be, but all things can be forgiven and everything is not dark.

Please keep posting! This is the one of the only outlets that I have to be honest; I appreciate that you have opened up to strangers on a forum. No matter the responses to your posts, please continue to vent your anger and frustration here rather than taking it out on yourself.

Pythia

 

[bala80]

Hi,

I'm one person that can directly relate to what Troy is going through psychologically and physically. I can trace back to a careless incident on my behalf, that in retrospect was definitely the trigger of my ALS symptoms, and the guilt is unbearable. I know it may sound absurd to most, so I'm not going to get into specifics as I doubt anyone will be genuinely interested. I've noticed Troy has not posted for a while, therefore I was hoping to get in touch with him in some way. Is it possible to obtain his email address from the moderators of this site? Al?

 

[hboyajian]

It is quite possible that ALS affects a person's sense of balance. For some people this can be the initial symptom apparent. I was sure my dad's spinal curvature-due to ALS-was caused by a head injury he suffered (tripped over a hose a neighbor had left out and hit his head on a brick wall). He also had an arm injury just prior to that when he lost his balance and fell on his shoulder. I now believe both these accidents were caused by the ALS induced balance problem. He wasn't able to respond normally in a situation where he would have ordinarily been able to regain his balance fairly easily--because he already had the beginning of ALS. Please consider this before assigning yourself a crippling load of self blame. Another piece of the puzzle is that he experienced terrible sea-sickness when on a boat ride about this same time, and he had never been sea sick or ever had any kind of motion sickness before in his life.

 

[CindyM]

Hi there. If you send a PM to a member, their private email notifies them that a message is waiting on this fourm. At least it works that way for me. Cindy