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jjgevf

Member
Joined
Apr 3, 2011
Messages
14
Reason
Learn about ALS
Country
US
State
La.
Well, I seen the neuro doctor on Tuesday finally.He told me the MRI, I had,looked normal.So no MS,and nothing else abnormal on my scan.He did a neuro exam and ask alot of questions.He said he specializes in ALS and didn't think thats where we were headed,which I was relieved to hear.He said the twitching and cramps I have,he thought was caused by BFS.The swallowing issue,he didn't know about that one,said in ALS,it continues to get worse,not wax and wane.It won't be bad one day and not so bad the next.He said it could have happened to me that first time and my body became anxious about it and could be causing it to happen.Which makes sence,it does really scare me and I find myself scared when I eat that it will happen.So were gonna see if taking care of the anixety will solve that problem.He will see me in 6 weeks and go from there.I feel so much better,hope my body we straighten up and get back to normal.Just wanted to let everyone know what I found out.I know a lot about ALS now and I think thats a two edged sword,there needs to be more awareness and support for this diesase.Thanks to the ones that listened to me on here and supported me.To the ones that were not so nice at times,I understand it a little better now after learning more about this diease,I pray one day soon there's a cure.Good luck to all of you!
 
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momap53

Very helpful member
Joined
Jul 2, 2011
Messages
1,640
Reason
PALS
Diagnosis
05/2011
Country
US
State
GA
Good news! I hope the anxiety meds will help and that you will find some answers working with your Neuro.
 

Toto's Dorothy

Very helpful member
Joined
Jan 31, 2012
Messages
1,016
Diagnosis
11/2008
Country
US
State
Kansas
I'm glad for the good news. Time is precious and you spent the last year worrying needlessly. Also remember, it may take a while to tweak those an xi ety meds. Now run over to the A bout B F S si te and don't look back.
 

glupavomomiche

Distinguished member
Joined
Sep 25, 2011
Messages
272
Reason
PALS
Diagnosis
09/2011
Country
US
State
Texas
Thank you for the update! So glad you have seen an appropriate specialist and that he (and YOU!) are confident ALS is not on the table, so to speak. I think it is excellent that you are viewing this as a learning experience about ALS and hope you will become an advocate and perhaps participate in fundraising and other awareness campaigns. I'm sure your specialist can help point you in the right direction!

And BTW, it was WAY FUN to read and "hear" your Louisiana accent in your writing! I have a lot of relatives in the "gret stet of Louseeanna" and you sound just like them! :D
 
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