Seeking advice after 2.5 Years

[lgelb]

Yes, twitching can cause fragmented sleep and vice versa. And as Al points out, sleep fragmentation is implicated in anxiety, depression, chronic pain, twitching and lots of other things. Even if you're in bed for enough hours, if sleep is hit and miss, it's not the same. Your body needs refreshing sleep to work its best.

Depending on the sleep study results (if there is a problem with breathing, movement, or both), you could consider CPAP, BiPAP, meds, or whatever your specialist recommends. It is always worth looking at your mattress, pillow, heat/humidification in the room, and your sleep times, for starters.

 

[Clearwater AL]

Something I read a while back…

A common situation of those with Health Anxiety is… denial.
For some it can be harder to overcome than Health Anxiety itself,
only prolonging the realization (giving in) to maybe seeking
help for it. Often they won’t even accept a doctor telling them
they are anxious (anxiety). Dr. Google has them convinced their
symptoms are something serious… twitching, stiffness, sleep
deprivation and etc.

So, with their persistence the doctor (covering himself/herself) refers
them to a Neurologist. Back to Dr. Google, neurology searches, ALS,
the anxiety accelerates and they end up here.

Our very ALS knowledgeable members try to help them... that's
what the Forum is for. But... will they even accept their extensive
knowledge of ALS/MND first hand. Sometimes not.