second oppinion doctors appoinmant tommorrow

Status
Not open for further replies.

zac111

Distinguished member
Joined
Jan 14, 2007
Messages
175
Reason
PALS
Country
US
State
al
City
mobile
hey ltr i was wondering if you ever found out what kind of neruophaty you had i know you said that you had twithing to
 

ltr

Senior member
Joined
Feb 11, 2007
Messages
690
Country
US
State
NY
City
Elmira
No, I haven't found out. I go back to see the neuro in the neuromuscular clinic the first week of May. But, he did mention Isaac's syndrome which is neuromyotonia. The Neurontin was working for the symptoms pretty good and then it started causing some very, very strange "dreams" I guess I should call them. Being a single parent I was scared to have this happen in the night. I was up every hour with these dreams. The Neurontin worked great for the twitching, cramping and stiffness so I really hope there is something similar I can try that won't have the weird side effects. I am having some pretty bad twitching and spasms the last few days. I may not ever get a treatment, but I think I am handling the symptoms much better lately. I hope the same for you. Leslie
 

patricia1

Very helpful member
Joined
Sep 18, 2006
Messages
1,171
Reason
PALS
Diagnosis
7/1999
Country
US
State
newjersey
City
lopatcong NJ
Dear Zac Have you had a MRI Yet Pat
 

zac111

Distinguished member
Joined
Jan 14, 2007
Messages
175
Reason
PALS
Country
US
State
al
City
mobile
i hope so leslie.i have had a mri of the brain and cervical spine pat they come back normal,im being tested for lyme and a bunch of the other stuff now by a specialist the only test that i like haveing now is a spinal tap and after that dont think there is any more to do.the only good thing ive saw lately is that all my reflexes are normal now and im waiting on the bloodwork to come back.
 
Status
Not open for further replies.
Top