second oppinion doctors appoinmant tommorrow

[zac111]

well this much i know i have twithing in my calves slow motor nerves and decreased reflex in my arms im seeing another nero in the morning they said hes a specialist in the field of motor nerves just dont know what kind of specialist he is,well wish me luck i could sure use it.

 

[ltr]

Well Zac, I really hope you get some answers so that you can get some relief. Good luck tomorrow and let us know what the doc says. Leslie

 

[tabney]

Positive vibes coming your way!

Zac,
I will keep you in my thoughts and prayers.
Toni

 

[zac111]

thanks for all your thoughts ill post as soon as i find out anything.

 

[CindyM]

Good luck today Zac. We'll be with you in cyber-spirit! Cindy

 

[zac111]

well everyone i went to the other nerouogist today he told me that he wasnt sure if it was a nerve disease are not he set up another emg and nerve study for 10 days from now.he said all my reflexes were normal for age which is good cause the other doc said they were decreased, i guess its a good sign that they are normal anyway.still i have slow motor nerves and i guess well have to wait and see what the emg results are this time i hope good.

 

[ltr]

I hope you get some answers soon. Did the doc mention what nerve diseases this could be? In any case, I'm sure another EMG/NCV will help with your diagnosis and hopefully to ease your mind. Good luck and let us know. Leslie

 

[zac111]

no he didnt mention what it might be,but i know whatever it is it is effecting my motor nerves he did order a bunch more test however one of them being a lyme disease test.

 

[ltr]

Let's hope it is lyme. Isn't it awful when we have to hope for an illness because we are scared of a worse illness. I know you have been suffering for a while now, and I really pray they will find something that can be treated. I bet the next ten days can't come fast enough for you. Have you made a list of questions that you really want answers to? I think you deserve the answers, so please think about it. Leslie

 

[zac111]

thaks i havent thought of that but i will do it i was going to tell him about the really bad dry skin i have with this to but i forgot when i got in there..lol silly me always nervous.i dont know whats going on i know i was out on a date tonight and my words started running together and i started to studder a lil now i hope als doesnt start like this i still dont have weakness are at least dont think i have anyway guess time will tell.

 

[Jamiet]

Zac,

Lyme is very controversial (spelling?), but, in any event, most labs are not reliable on testing. You need to send your blood to IGENEx Labs, for a complete lyme panel, if your considering getting tested. Everyone on-line says that they are the experts. I've ordered one, i'm in the same position as you and alot of other people. Alot of unexplained issues, but NO ALS....? Anna1980 got tested for lyme, she has the same problems as us and bam, she tested positive.

There is a ton of controversy on this lyme, but it's very possible and treatable.

I would recommend sending your blood to this lab, order the 6050 panel. You will need to find someone to draw your blood, separate some of it into serum and send blood and serum to them. As easy as this sounds, it not easy. Most people whom draw blood, have contracts with labs, so you'll have to find someone who will draw it, and give it back to you and you ship it via DHL or FEDEX. Go online and get the test request forms and the instructions at igenex.com. It will tell you what you need, but in short, you need 2 ml of blood and at lest 3 ml total of serum.

good luck and let us know.



jamie

 

[CindyM]

Hi Zac- my words slurr from time to time and I fear that I sound like I've been drinking - not a good thing at 9am in the office! but i always ask and everybody tells me they don't notice anyhting so I guess I won't worry unless and until others hear it too. Hope this helps a little. Must be unnerving to be on a date and have your speach take on a mind of its own. It's bad enough when our arms and legs won't cooperate. BTW, yo didn't take her roller-skating or dancing or anything like that, did you. I can't pull off walking straight, never mind appearing coordinated! Cindy

 

[patricia1]

Cindy Thats how I started in 1999 with a ever so slight slurr worst at night sounded like I was very tired. Than it gradually got worse and now its very bad but has remained the same for the last three years and i do have to repeat myself but I am still understandable However it took 6 years to get to my arms where I had to quit my job in sept 05 I consider myself very lucky.I could live like this if I had to but I know it wont stop here.Pat

 

[zac111]

well my words dont slur they just run togrther its just like sometimes they dont want to come out right although i know what i want to say....lol

 

[CindyM]

I hear you Pat. You are actrually my new role model since every time I read your history I thing "if it has to turn bad at any point make it wait a few years like it did for Pat."