rose
Extremely helpful member
- Joined
- Mar 29, 2008
- Messages
- 2,925
- Reason
- DX MND
- Diagnosis
- 7/2008
- Country
- US
- State
- Maryland
- City
- Anytown
Hi, I'd like to find a book on ALS that describes how the respiratory and swallowing are affected. Mostly looking for one that will go into what the expected progression would be. Something written in layman's language, but no so simplistic that it doesn't really explain anything.
My family is looking at what I have from so many different viewpoints. On one hand I've got those that think I just need to go to an alternative medicine doctor, nutritionist, and acupuncturist (translated to mean): the pharmaceutical companies and the main stream medical doctors don't really want to get people well because they wouldn't make enough money!) ~ others that don't think I seem that sick, (i.e. your voice hasn't gotten that much worse lately, and heck, if you can't eat raw carrots or chewy breads, just don't try!) and then of course others that are just a wreck over this.
I've tried googling books on ALS, and really of course want a book on bulbar onset, but surprisingly nothing comes up, mostly just websites, which are helpful to those that are willing to sit at the computer, but I really truly could use a conventional book! any suggestions? thanks
My family is looking at what I have from so many different viewpoints. On one hand I've got those that think I just need to go to an alternative medicine doctor, nutritionist, and acupuncturist (translated to mean): the pharmaceutical companies and the main stream medical doctors don't really want to get people well because they wouldn't make enough money!) ~ others that don't think I seem that sick, (i.e. your voice hasn't gotten that much worse lately, and heck, if you can't eat raw carrots or chewy breads, just don't try!) and then of course others that are just a wreck over this.
I've tried googling books on ALS, and really of course want a book on bulbar onset, but surprisingly nothing comes up, mostly just websites, which are helpful to those that are willing to sit at the computer, but I really truly could use a conventional book! any suggestions? thanks