Cforinger1
New member
- Joined
- Feb 27, 2017
- Messages
- 9
- Reason
- Loved one DX
- Country
- US
- State
- Pa
- City
- Butler
First off thank you for taking time to even read this and answer. I will try to make this as short and sweet as possible. So my mother was diagnosed with ALS about 4 years ago and lives with me. I have watched this terrible disease take away her hands, feet arms and legs. This disease is slowly taking away my mother and it kills me that there is nothing i can do.
Since her diagnosis and my brother telling me that she has both SODS1 and 2 and my brother having SODS1, which i really dont understand the likelyhood of him having the disease or the likelyhood of me having the disease. In september i started having issues, I was working out almost everyday without problems, but i noticed that when I tried to pick something up, it would seem heavier than it was. I didnt think anything of it, and thought it was more or less a pinch nerve or shoulder problems considering my left shoulder was hurting. The next thing I know my leg seizes up and cramps up to the point where I can barely walk. My leg went back to normal, but my anxiety was sky rocketing, the next symptom I expierenced was my face going numb and tingling. My tounge started tingling and I started to get vertigo. I decided to go the Drs who wrote me a script for zoloft and sent me on my way. 3 days later I stopped taking my meds and figured it was just from anxiety and my shoulder seemed fine and leg stopped hurting. I went 4 months without a single issue, and I chalked it up to anxiety and stress. Earlier this month out of no where certain spot of my face would go numb and get pins and needles just like before. This time I went to the ER, 1 CT scan and blood work later, DR has no idea whats wrong with me. Since then my numbness and pins and needles left my face, but now my shoulder has started to act up and my leg feels like strained a muscle or is cramping. Granted I think the muscle cramping in my leg is from doing ALS strength tests on my calf.
So to get to my symptoms; I have not twitches but a single twitch all over my body, I am able to pick up weight, and do the weight I was able to do before, but my muscle fatigue quickly, and lastly my left foot of the leg that feels like it cramped or strained, feels like its vibrating. Some back round to my medical history, I have stenosis in my back and I have bulge in my C4 and C5 of my neck. I plan to see a neurologist but I am in the middle of getting a new PCP and the Neuro wants a referral. So my question to everyone is am I crazy? Do I even fall into a category of ALS or should does it lean more to MS?
Since her diagnosis and my brother telling me that she has both SODS1 and 2 and my brother having SODS1, which i really dont understand the likelyhood of him having the disease or the likelyhood of me having the disease. In september i started having issues, I was working out almost everyday without problems, but i noticed that when I tried to pick something up, it would seem heavier than it was. I didnt think anything of it, and thought it was more or less a pinch nerve or shoulder problems considering my left shoulder was hurting. The next thing I know my leg seizes up and cramps up to the point where I can barely walk. My leg went back to normal, but my anxiety was sky rocketing, the next symptom I expierenced was my face going numb and tingling. My tounge started tingling and I started to get vertigo. I decided to go the Drs who wrote me a script for zoloft and sent me on my way. 3 days later I stopped taking my meds and figured it was just from anxiety and my shoulder seemed fine and leg stopped hurting. I went 4 months without a single issue, and I chalked it up to anxiety and stress. Earlier this month out of no where certain spot of my face would go numb and get pins and needles just like before. This time I went to the ER, 1 CT scan and blood work later, DR has no idea whats wrong with me. Since then my numbness and pins and needles left my face, but now my shoulder has started to act up and my leg feels like strained a muscle or is cramping. Granted I think the muscle cramping in my leg is from doing ALS strength tests on my calf.
So to get to my symptoms; I have not twitches but a single twitch all over my body, I am able to pick up weight, and do the weight I was able to do before, but my muscle fatigue quickly, and lastly my left foot of the leg that feels like it cramped or strained, feels like its vibrating. Some back round to my medical history, I have stenosis in my back and I have bulge in my C4 and C5 of my neck. I plan to see a neurologist but I am in the middle of getting a new PCP and the Neuro wants a referral. So my question to everyone is am I crazy? Do I even fall into a category of ALS or should does it lean more to MS?