Karin Joy
Member
- Joined
- Jan 21, 2008
- Messages
- 14
- Reason
- Other
- Country
- US
- State
- California
- City
- Los Angeles
Hi - I am new to this forum. I am a 40 year old female, and I am exremely scared. I have been having problems for over a year now, with my thyroid. I have been on thyroid medicine for 15 years and in the last year, my thyroid has been out of control (they diadnosed my with Hashimotos). I told my Endo that I was having weakness in my arms and thighs. He referred me to see a Neurologist. I call the number he gave me and it was an ALS clinic. I freaked out, called my Endo and he said he was sorry that he did not know this Doctor was part of the ALS clinic. His thoughts were myopathies. I freaked out, and started to see a new endo, he told he all of my muscle weakness and twitching was from my thyroid. I also have an elevated CK it has gone from 167 to as high as 323 (the norm being under 200 depending on the lab) in the last year.
My new Endo told me not to worry. I have been to a Neurologist that did an EMG and Nerve test, and everything was normal. I went back to the new Endo who basically said there is no reason for my CK to have been so high again and my thyroid almost normal, he said I have ALS, and referred me to a Rhumetologist.
I called the Neurologist and she said she does not feel that I have ALS. I am just not convinced, so I made an appointment with the ALS clinic that my first Endo referred me to, after the two hour appointment, she said she was 99.8% sure I did not have ALS.
Since that Appt, I have been had pain in my thumb pads and the twitching in my left leg now feels like it is vibrating. My hands feel weaker, especially in the wrists and the thumbpads.
I am scheduled to undergo another EMG next week, but I am almost scared of what it is going to say.
Any Advice?
Thank you
Karin:-D
My new Endo told me not to worry. I have been to a Neurologist that did an EMG and Nerve test, and everything was normal. I went back to the new Endo who basically said there is no reason for my CK to have been so high again and my thyroid almost normal, he said I have ALS, and referred me to a Rhumetologist.
I called the Neurologist and she said she does not feel that I have ALS. I am just not convinced, so I made an appointment with the ALS clinic that my first Endo referred me to, after the two hour appointment, she said she was 99.8% sure I did not have ALS.
Since that Appt, I have been had pain in my thumb pads and the twitching in my left leg now feels like it is vibrating. My hands feel weaker, especially in the wrists and the thumbpads.
I am scheduled to undergo another EMG next week, but I am almost scared of what it is going to say.
Any Advice?
Thank you
Karin:-D