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lostinlouisville

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Hi, I am a 44 year old women, who feels like 80. About 2 years ago my right hip started hurting, did not think much about it until it started interfering with my life everyday. then about 8 months ago I noticed a little twitch in my right fingers which has now progressed to hand tremors I have blurred vision and stiff neck and find it a little hard to swallow. Swallowing something twice usually works. Went to nuroligist he did an mri with contrast and eeg to rule out ms and simple partial seizures they were both neg. so he just dropped it at that, no follow up visit or anything. I am trying to help my daughter plan a wedding but do not have the energy to walk more than 30 minutes and just have general fatigue any suggestions
 

boxer22

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Hi, I am a 44 year old women, who feels like 80. About 2 years ago my right hip started hurting, did not think much about it until it started interfering with my life everyday. then about 8 months ago I noticed a little twitch in my right fingers which has now progressed to hand tremors I have blurred vision and stiff neck and find it a little hard to swallow. Swallowing something twice usually works. Went to nuroligist he did an mri with contrast and eeg to rule out ms and simple partial seizures they were both neg. so he just dropped it at that, no follow up visit or anything. I am trying to help my daughter plan a wedding but do not have the energy to walk more than 30 minutes and just have general fatigue any suggestions


Hi,
I am not a doctor but all the literature I have read says that Pain is not a symptom of ALS. Either is blurred vision. Also, Everyone has twiching to some degree. Have you had an x-ray of your hip? That might be a good place to start but only your doctors knows that. I think you can rest easy about the ALS thing but if it is still bothering you maybe you should see another nero.
 

wright

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Hello lostinlouisville

I'm not really seeing anything that should cause too much alarm. The stiff neck and swallowing problems could easily be explained by worrying about your health (tense neck and swallowing muscles). I'm not sure if I know anyone that doesn't twitch (especially during times of stress and worry about your health and planning weddings would certainly qualify as stressors). I didn't hear anything about weakness and muscle atrophy. Twitching for that long without those two symptoms is another good sign.

I would certainly go back to your neuro until they determine what the causes of your symptoms are. If he/she doesn't help you further, go elsewhere.

Now go help pick flowers, invitations, seating arrangements, etc. That's all you need to worry about at the moment . . . well . . . that and writing checks. :-D
 

CindyM

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One thought that comes to mind is that once the wedding is over you may want to see a neurologist associated with a large teaching hospital. I'm thinking you may want to wait because this involves a battery of tests, and a waiting period for the results. Sometimes these tests will pick up other, treatable, conditons that your local guys might miss. However, all this is very stressful when you are already in the midsts of a happy (but stressful) event like a wedding.

So hang in there before deciding to worry. I've had symptoms for 2 years now and still no DX. I'm still telling myself that it is not time to worry, LOL. Of course I do my share of fretting but the folks around here are very supportive and we help each other out during the long process of finding out what is going on.

One thing that helped me was to read posts from some of the PALS on board. You'll meet a bunch of folks who are enjoying their lives, enjoying their families, and remaining calm in the mists of everything. Hope this helps, Cindy
 

lostinlouisville

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Well the wedding is over it was beautiful. Went to nuro yesterday. Twitching is harder and he sounded more confused than before. He orderes emg and blood test cpk ana esr. He also said he would probably be sending me to a muscle disorder dr. after testing. He also started me on gabapentin, i think that is how you spell it. So what do you think.Tnanks
 

Al

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I'd be pushing this guy to send you to a large neurological center. Still doesn't sound like ALS but if it''s something obscure the more patients going through a clinic the better chance they will have seen something similar to you.
AL.
 

lostinlouisville

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knees buckle

Hey thanks for reply I am having a new problem today. My right knee is buckling with almost every step could it be the Gabapentin or a new symptom. really don't like to call nuro with every little thing. The girl that answers acts like I may be bothering her. thanks
 

gbrown

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Knee Buckle

All the more reason to get to a large university center. It doesn't sound much like ALS to me either but you never know, and until they rule out all the other possibilities (which took me three years of going to neuro's), you will not get a diagnosed. Like I said in another post nobody with ALS has the exaxt same symptoms.
 

patricia1

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Hey thanks for reply I am having a new problem today. My right knee is buckling with almost every step could it be the Gabapentin or a new symptom. really don't like to call nuro with every little thing. The girl that answers acts like I may be bothering her. thanks

Time to find a new neuro. It may take 5 neuros to get answers Like I said before alot of neuros are quacks!
 

sdsyd

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Hi lostinlouisville-

Glad you enjoyed the wedding! Sounds like everything went beautifully.

About your symptoms- There are alot of different neuro problems out there, and it seems like they go through quite the process of eliminating every disorder under the sun sometimes before making a diagnosis.... but I was curious with your mention of blurred vision if they mentioned MS at all?

Hang in there like the rest of us! We've all got strange things happening to our bodies :eek:)
 

lostinlouisville

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Thanks for all the comments. Today has been rough. About the question of MS. I actually went to the nuro because I thought I had MS. He did not think from the beginning it was that. He did an MRI and said I had lesions in the white matter of my brain but not like kind in MS. He said you can have them and it not mean a whole lot. I feel like he has been thinking something else from the beginning but not saying anything. He comments mainly on my muscle weakness and twitching under the skin. That is why he says he is confused and ordered emg and wants to send me on to nuromuscular dr. I do have a question. Has anyone else ever heard of normal lessions in brain MRI. He really puts me off when I mention MS or partial simple siezures and says that is not what is wrong with me. I kind of joked with him when he said he was sending me on for a second oppion., I told him maybe he should give my first one before I got a second. I don't think he liked my sence of humor. I am not good at spelling so I hope you all can read this. Thanks again to everyone out there. I keep you all in my thought daily and read alot of what you write and I think you all are so strong and have very kind hearts. I really feel blessed by you all.
 

lostinlouisville

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general Question about site

Hey, I Am Really New To This Site Just A Question. When I Want To Go To Profiles Or Follow Other Links You Guys Put Up It Say I Am Denied Access. Am I Not Registered Properly Or Am I Doing Something Wrong.also How Do I Talk To You Guys Out Of My Original Post. Thanks
 

Al

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Hi Louisville. When you first join you can't access all the features until you have a certain number of posts. This keeps out spam and sellers of crap most of the time. Carry on posting in any of the other forums.You'll be there soon. If you want to ask a question you can click on the green start thread button on the thread index page and fill in the blanks.
AL.
 

lostinlouisville

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knee's still giving out

Hi everyone, well I have been off my Gabapentin 3 days and my knee's are still giving out. I really don't know if this could Be M.S. symptom. Even though my dr. is so sure it's not M.S. I had wrote in earlier post about Lesions did'nt know if anyone had heard of normal lesions. thanks
 

lostinlouisville

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fatigue, fatigue?

Well guys, I am so fatigued. I mean the kind that draines you first thing in the morning and progresses to tears by 3 pm. I have noticed I can not yell for my children. I have 4 year old twins and a 6 year old at home still and they may go outside without me knowing and I will try to yell for them to come in and I just don't have the breath, it makes me dizzy to try. I feel increasingly out of myself with no energy at all. Has anyone gone through this with a combination of my other symptoms. Thanks for your support.
 
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