Misterbushy
New member
- Joined
- Jul 11, 2022
- Messages
- 5
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
Hi everyone,
I would just like to say that you are all in my thoughts and prayers for what you are going through. Especially those that have been diagnosed, you are brave and beautiful and strong and I love you.
I’m really seeking some guidance or advice. I’m a 26 years old woman. To start off, my grandmother and my aunt (her daughter) both passed away from ALS. I have witnessed the disease firsthand since I was a child and my grandma’s death scarred me as I was only 13. I miss her everyday.
I’ve been having a slew of health problems for the past two weeks. To be quite honest, I am an absolute nerve job when it comes to health anxiety and I have definitely been stressed out. I’ve had off and on heart palpitations for the past few months and recently two weeks ago they started again out of nowhere. I was also having some chest heaviness and my right arm felt a little weak. My blood pressure was 130/80 when I went to my doctor and he didn’t seem overly concerned but set me up for a halter monitor to check out the palps. They began to calm down as the week went by but then I started having constipation (I have always struggled with gastro problems as my mom has IBS and it seems I got it from her, my sister does too). Eventually I finally started to go again but it’s been diarrhea ever since.
The “weakness” or I guess I could say tightness has persisted in my right arm and now I’m starting to feel cramping in my right hand. I also have noticed for the past few months that my right hand has been cramping more than usual but usually when I’m holding something like a heavy pan or when I was painting my grandpas house. I now have also started to feel a slight heaviness in my right leg and the other night I felt pins and needles in both of my feet but this is off and on. I still have the chest heaviness off and on as well. I also used to struggle with vertigo really bad a few years ago but it has gotten tremendously better and doesn’t bother me much anymore but recently I have been having more episodes of lightheadedness. I also have had a few episodes of almost passing out after slightly intense exercise. My right eye was also feeling tense for a few days before all of this happened but that resolved itself. Only other symptoms I’ve had are off and on head/neck tightness, fatigue, lack of appetite, and trouble sleeping. I also feel like my tongue is fat or I’m noticing how I swallow more. I know a lot of this can be caused by stress.
I’m completely and utterly exhausted. I’ve cried for days wondering if it’s going to happen to me next. I feel like my body has been hit my a truck and I wasn’t even worried about ALS at first until it popped up in my head the other day and I started googling. Hopefully this doesn’t seem selfish as I know many of you also have family members that are going through it right now. But it’s scares me to death to think that I might get it too. My dad is 57 and hasn’t shown any symptoms thank God. My grandma and aunt had symptoms start years before they both passed away around the age of 63. My dad and other aunts have never been tested for the gene and they never will as they don’t want to know. My grandmas started out as carpel tunnel in her hand and I’m afraid that that’s what I’m experiencing now. My sister also complains about her hand cramping.
I know I have a higher chance of getting it than other people. But I’m scared that it’s already starting and that I’m just now noticing the symptoms getting worse. It’s destroying my mental health. I do want to seek therapy for my health anxiety.
If any of you can share your thoughts or advice, I would really appreciate it.
I would just like to say that you are all in my thoughts and prayers for what you are going through. Especially those that have been diagnosed, you are brave and beautiful and strong and I love you.
I’m really seeking some guidance or advice. I’m a 26 years old woman. To start off, my grandmother and my aunt (her daughter) both passed away from ALS. I have witnessed the disease firsthand since I was a child and my grandma’s death scarred me as I was only 13. I miss her everyday.
I’ve been having a slew of health problems for the past two weeks. To be quite honest, I am an absolute nerve job when it comes to health anxiety and I have definitely been stressed out. I’ve had off and on heart palpitations for the past few months and recently two weeks ago they started again out of nowhere. I was also having some chest heaviness and my right arm felt a little weak. My blood pressure was 130/80 when I went to my doctor and he didn’t seem overly concerned but set me up for a halter monitor to check out the palps. They began to calm down as the week went by but then I started having constipation (I have always struggled with gastro problems as my mom has IBS and it seems I got it from her, my sister does too). Eventually I finally started to go again but it’s been diarrhea ever since.
The “weakness” or I guess I could say tightness has persisted in my right arm and now I’m starting to feel cramping in my right hand. I also have noticed for the past few months that my right hand has been cramping more than usual but usually when I’m holding something like a heavy pan or when I was painting my grandpas house. I now have also started to feel a slight heaviness in my right leg and the other night I felt pins and needles in both of my feet but this is off and on. I still have the chest heaviness off and on as well. I also used to struggle with vertigo really bad a few years ago but it has gotten tremendously better and doesn’t bother me much anymore but recently I have been having more episodes of lightheadedness. I also have had a few episodes of almost passing out after slightly intense exercise. My right eye was also feeling tense for a few days before all of this happened but that resolved itself. Only other symptoms I’ve had are off and on head/neck tightness, fatigue, lack of appetite, and trouble sleeping. I also feel like my tongue is fat or I’m noticing how I swallow more. I know a lot of this can be caused by stress.
I’m completely and utterly exhausted. I’ve cried for days wondering if it’s going to happen to me next. I feel like my body has been hit my a truck and I wasn’t even worried about ALS at first until it popped up in my head the other day and I started googling. Hopefully this doesn’t seem selfish as I know many of you also have family members that are going through it right now. But it’s scares me to death to think that I might get it too. My dad is 57 and hasn’t shown any symptoms thank God. My grandma and aunt had symptoms start years before they both passed away around the age of 63. My dad and other aunts have never been tested for the gene and they never will as they don’t want to know. My grandmas started out as carpel tunnel in her hand and I’m afraid that that’s what I’m experiencing now. My sister also complains about her hand cramping.
I know I have a higher chance of getting it than other people. But I’m scared that it’s already starting and that I’m just now noticing the symptoms getting worse. It’s destroying my mental health. I do want to seek therapy for my health anxiety.
If any of you can share your thoughts or advice, I would really appreciate it.