bdavis16
New member
- Joined
- Jan 4, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NC
Thank you all so much first of all for taking a minute to listen to me. I really hate to bother you when you're already dealing with this.
My name is Brittany. I'm a 28 year old Black woman. I have a 16 month old daughter that I don't want to leave. I've been having intermittent shortness of breath since the month after I delivered, so September 2020. I also developed an eye twitch several months ago. Since then it's progressed to twitching in my calves, my bicep, my stomach, my cheek etc. And it happens frequently in a day. I also have what I thought was a lump on my forearm, but an ultrasound showed nothing. Now I'm scared that it's actually a dent in my forearm caused by atrophy. In addition, several weeks ago, I noticed that my hands seemed wrinkled but thought nothing of it. Anyway, I was looking up the cause of the twitching and came across ALS and scared myself witless. I've been googling this non stop since I found out 2 days ago. I feel guilty because I can hardly tend to my daughter for being on my phone searching. I PROBABLY SHOULD HAVE LED WITH THIS, but I notice that on the back of my left hand especially, the muscles on the left side (underneath my pinky and ring finger) the muscles seem sallow and sunken. I have the same effect on the back of my right hand, but it's not as pronounced. Of course, I'm terrified that it's split hand sign. As I type this, my left eye and right thigh are twitching. I'll try to include a picture thank you so much for any help. And as an aside, do you know of many Black women my age with ALS.
My name is Brittany. I'm a 28 year old Black woman. I have a 16 month old daughter that I don't want to leave. I've been having intermittent shortness of breath since the month after I delivered, so September 2020. I also developed an eye twitch several months ago. Since then it's progressed to twitching in my calves, my bicep, my stomach, my cheek etc. And it happens frequently in a day. I also have what I thought was a lump on my forearm, but an ultrasound showed nothing. Now I'm scared that it's actually a dent in my forearm caused by atrophy. In addition, several weeks ago, I noticed that my hands seemed wrinkled but thought nothing of it. Anyway, I was looking up the cause of the twitching and came across ALS and scared myself witless. I've been googling this non stop since I found out 2 days ago. I feel guilty because I can hardly tend to my daughter for being on my phone searching. I PROBABLY SHOULD HAVE LED WITH THIS, but I notice that on the back of my left hand especially, the muscles on the left side (underneath my pinky and ring finger) the muscles seem sallow and sunken. I have the same effect on the back of my right hand, but it's not as pronounced. Of course, I'm terrified that it's split hand sign. As I type this, my left eye and right thigh are twitching. I'll try to include a picture thank you so much for any help. And as an aside, do you know of many Black women my age with ALS.
