lindsayvictoria
New member
- Joined
- Jul 24, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NE
- City
- Grand Island
Hello, and thank you in advance for your time.
I have been having medical issues for about 6 months now. It started with chronic infections, then severe stomach and muscle pain. I've had hematuria with no known cause and low grade fevers for months. I saw a rheumatologist 5 days ago that ruled out autoimmune, but he noticed that I had tongue fasciculations and said he thought I might have MND and then preceded to tell me about ALS. I've had full body fasciculations and cramps and lots in my left leg, where I also have a mysterious lump. The lump is in my upper thigh above my knee and it feels like a really tight muscle and it is kind of numb.
I guess I'm just wondering if anyone had it start with a tight muscle lump or a knot? I have an appointment with a neurologist in a couple weeks and I'm a complete mess about this.
I have been having medical issues for about 6 months now. It started with chronic infections, then severe stomach and muscle pain. I've had hematuria with no known cause and low grade fevers for months. I saw a rheumatologist 5 days ago that ruled out autoimmune, but he noticed that I had tongue fasciculations and said he thought I might have MND and then preceded to tell me about ALS. I've had full body fasciculations and cramps and lots in my left leg, where I also have a mysterious lump. The lump is in my upper thigh above my knee and it feels like a really tight muscle and it is kind of numb.
I guess I'm just wondering if anyone had it start with a tight muscle lump or a knot? I have an appointment with a neurologist in a couple weeks and I'm a complete mess about this.