Is the twitching normal do you beleive really its nothing how do you make yourself. I have so many weird symptoms i can not ignore them i try they dont go away or get better. I have been trying to find a therapist i have not had much luck. I made an apt to go back to the neuro on friday if he does not think i have als then i want him to refer me for a second opinion because i cant live this way not knowing what is going on with my body i need to know what is wrong with me. if it is not this then i want to know what it is.
jattd
I recently registered and I am new to this site. I joined to learn more about ALS in the hope of being some comfort to my 57-year old Aunt who was recently and definitively diagnosed with ALS.
The anxiety, fear, and sheer desperation in your posts is palpable. My heart aches for you. It is in this spirit that I offer my thoughts. Moderator--please bear with me while I stray slightly off topic to provide some well intentioned advice for someone whom is clearly hurting and very scared.
I do not have ALS symptoms but I have faced other serious health threats. I, too, am the mother of small children and I am close in to you in age. At one point, I became obsessed with death, dying,and the entire notion of my children's welfare should I meet an untimely demise. Some of my concerns were valid and reasonable. Many were not. But it's hard to see this for yourself when you're in the midst of this type of depression. And make no mistake about it--the type of anxiety that you are describing is almost always linked to depression. Please, please...seek therapy and the correct medication to get you out of this cycle. Because even if it turns out that you do indeed have a chronic, serious, or heaven forbid-- terminal disease (unlikely), you will be far better equipped to deal with ANYTHING that comes your way if your emotions and mood are on a more even keel.
Here is the piece of advice that I most wanted to pass along dear sister...(It was given to me by a wonderful GP who had tested everything that could be tested on me and still arrived at no definitive diagnosis):
NONE OF US are getting out of this thing alive. Not one of us.
ALS OR no. Enjoy the time you have. If you are unable to do this without pharmaceutical assistance, so be it. While you're fretting, moody, and anxious, precious time slips away. You may not have a handle on your physical affliction but here is what you DO know for sure: Your children will have memories of an anxiety ridden, petrified mom who was paralyzed by emotional turmoil. For them and for you, get the correct pshychiatric help you need and I think you will see things with greater clarity, more perspective, and most importantly, more peace of mind. At this point, your FEAR is worse than any real or imagined calamity that you could endure. Meanwhile, the time that you do have, which could be days, weeks, months, or decades...is being squandered. I say this with love and support--not judgement nor criticism. Depression and anxiety can rob your children of their "real mommy" just as much as the most dastardly, physical disease you could think of...including ALS.
John Lennon said it best..."Life is what happends while we're busy making other plans".
God bless you and keep you. You are in my thoughts and prayers.
