ex_ser27
New member
- Joined
- Mar 9, 2020
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- GR
- State
- NY
- City
- Athens
Hello and thank you for your time. I am a 20 year old male and while i know it's rare to have this being my age, i have been panicking close to 4 years now and there are symptoms that i just cannot ignore . My story starts with a really sudden weakness in both of my legs, i just woke up and my legs 'felt' so heavy and i could bearily walk that day.
Then my right back muscle ( i think it's called spatula not sure, the wing like one sorry for my ignorance) felt really weak and still is weak to this very day, i can feel it when i type on the computer or i pick something up, it's like is popping outwards really weird. A couple months later i am still twitching and trying to relax from my ALS fears untill i see that the muscle between my thumb and index is twitching and is much smaller than it used to be, and trust me on that one i remember how it used to look since i used to workout a lot, my hands were beefy and pretty strong.
Again a month later i saw that the muscle on the base of my thumb was atrophied just like the muscle between the thumb and the index like it is very clear that the right thumb is much smaller than the left one. However, the most annoying symptom and the scariest is my difficulty to swallow properly, like every time i try to drink water there is a weird and loud sound coming from my throat and i had choked numerous times drinking and also eating bread seems harder it's really annoying and scary.
A year later after these symptoms appeared i decided to go to a neurologist who really did not take me seriously due to my age but regardless said my reflexes seemed fine and he only cared about my dysphagia so he instructed me to an EMG, which came back 'normal'. After that i decided to go to another neurologist who noticed anisocoria in my eyes and instructed an MRI which i am currently waiting for.
Also did some blood tests which showed a midly elevated CPK but they said that was due to me working out.
Long story short my thumb still functions which is reassuring but this kind of atrophy especially with twitching is scaring me so f****g, especially since i read about the split hand sign. I feel really depressed and scared, cannot sleep properly or focus on my studies.
Again thank you for your time and your patience for reading that long, i really feel like there is no one to talk to right now being in this terrible limbo...
Then my right back muscle ( i think it's called spatula not sure, the wing like one sorry for my ignorance) felt really weak and still is weak to this very day, i can feel it when i type on the computer or i pick something up, it's like is popping outwards really weird. A couple months later i am still twitching and trying to relax from my ALS fears untill i see that the muscle between my thumb and index is twitching and is much smaller than it used to be, and trust me on that one i remember how it used to look since i used to workout a lot, my hands were beefy and pretty strong.
Again a month later i saw that the muscle on the base of my thumb was atrophied just like the muscle between the thumb and the index like it is very clear that the right thumb is much smaller than the left one. However, the most annoying symptom and the scariest is my difficulty to swallow properly, like every time i try to drink water there is a weird and loud sound coming from my throat and i had choked numerous times drinking and also eating bread seems harder it's really annoying and scary.
A year later after these symptoms appeared i decided to go to a neurologist who really did not take me seriously due to my age but regardless said my reflexes seemed fine and he only cared about my dysphagia so he instructed me to an EMG, which came back 'normal'. After that i decided to go to another neurologist who noticed anisocoria in my eyes and instructed an MRI which i am currently waiting for.
Also did some blood tests which showed a midly elevated CPK but they said that was due to me working out.
Long story short my thumb still functions which is reassuring but this kind of atrophy especially with twitching is scaring me so f****g, especially since i read about the split hand sign. I feel really depressed and scared, cannot sleep properly or focus on my studies.
Again thank you for your time and your patience for reading that long, i really feel like there is no one to talk to right now being in this terrible limbo...
