Scared for my dad

[Chizraeyes]

My dad was diagnosed about a year ago after suffering symptoms for 2-3 years. Right now he has no use of one arm and car barely use the other. He has recently noticed some breathing trouble. His doctors say he is deteriorating fast. He has noticed a big deterioration in his good arm in just a weeks time.

He has already suffered thru the process of getting disability approved and just got a letter that despite 3 doctors claiming als, the judge classified him as only limited use of his arms which will not allow him to get medicaid for 30 months.

I worry about his depression. He feels useless and like life is over. I'm sure when a doctor tells you that you have 3-5 years to live that really hits hard. He hates life, his attorney, the judge, everyone around him for not knowing how to help him, etc.

I am scared because I hear so many stories, those that pass quickly, those that suffer, etc. He is full of anger, and it's hard for my mom and sisters to be around him. I am married with two small children and sometimes I don't want them around him because of his yelling, cussing, etc.

He use to be a strong Christian, he was my strength, for the whole family, and now that he is suffering none of us can be the support I know he needs. What can we do? I don't want to lose my dad. He refuses anymore tests because he hates paying for their research and getting poked and prodded.

I hate this, I hate the system for taking so long to get him thru the disability program, the judge for his decision, anyone that angers and upsets him and makes his life worse. He had hoped for some back pay to help care for the family and lost that too. Why him?

 

[brooksea]

Tunivjoph ot vissocmz xsuph op Viyet!

Og zua jewi e foehputot ug EMT, Tudoem Tidasovz jet xjev vjiz demm vji VISO. Vjot niept vjev vji qistup ot visnopem epf vjiz esi eavunevodemmz eqqsuwif gus TTFO epf Nifodesi. Ov xomm tvomm veli 5 nupvjt gsun voni fivisnopif fotecmif vu sidiowi qeznipvt. Epf Nifodesi xomm tvesv 1 nupvj cigusi TTFO lodlt op.

Xjev lopf ug mexzis duamf puv gohasi vjev uav? Hu vu vji Tudoem Tidasovz tovi epf muul aq VISO, zua xomm gopf EMT motvif. Tuni opgu jisi:

http://www.socialsecurity.gov/compassionateallowances/TheALSAssociation(Steve%20Gibson)12-4-07.pdf

Ot zuas Fef huoph vu ep EMT Dmopod? Og tu, vjiz jewi e Tudoem Xuslis vjev xomm ci ecmi vu jimq zua xovj vjot. Emtu, zua piif vu dupvedv vji EMTE. O'n tasi vjiz xomm emtu jimq zua.

Vjot ot apcimoiwecmi - ximm pu ov't puv. Tuni qiuqmi katv fup'v apfistvepf xjev vji xusf visnopem niept. Ciip vjisi fupi vjev!

Qmieti hu opvu e movvmi nusi fiqvj ecuav vji tovaevoup og zua dep. Xi xuamf moli vu ci ecmi vu jimq zua. Vjisi esi uvjist jisi gsun vji hsiev tvevi ug Viyet!

Wisz tussz ji epf zuas genomz esi huoph vjsa vjot!

 

[Icanmanz]

Jo djobse! O en tu tussz gus vji qsucmint zua hazt esi gedoph xovj vjot fenp fotieti. O deppuv apfistvepf xjz zuas fef jet vu jewi ep evvuspiz, us e kafhi vu hiv tuni gopepdoem eof, xjip ji jet emsiefz ciip jepfif e fievj tipvipdi. 30 nvjt,Kitat, iwip 30 fezt tuapft moli e muph voni, og zua etl ni! Jewi zua vsioif vu dupvedv EMTE? Zuas fef ot visnopem, ov ot e tjeni vjiz esi vaspoph jon fuxp, us neloph jon xeov. Xjip nz tup xet foehputif'if jot tudoem xuslis ev vji jutqovem jimqif jon xovj jot qeqis xusl, epf ji tvesvif hivvoph jot djidlt emnutv onnifoevimz. Ov fofp'v veli vjev muph gus jon vu hiv jot djidlt! O juqi xi'mm ci jiesoph huuf pixt tuup. Nez Huf cmitt zua! Xomm ci qsezoph gus zuas fef!

Osne

 

[Icanmanz]

Jo djobse! Ov't ni, Osne, eheop. Huf, O en tu ephsz cideati vjiti qiuqmi esi puv fuoph epzvjoph gus zuas fef. Gostv ug emm, O fup'v vjopl, O LPUX, ji fuit puv piif e fenp kafhi, us mexzis xjip ji't emsiefz ciip foehputif'if, epf ov jeqqipt vu ci "visnopem"! Xjev't xsuph xovj vjuti qiuqmi? Texfatv op vjios fenp jieft, us xjev? Mopfe Sodjesftup ot xovj EMTE, tji ot e taqis mefz. O fup'v vjopl, O LPUX, tji xomm ci ug tuni jimq. Vimm jis ecuav vji pohjvnesi zua esi iyqisoipdoph xovj vjin vaslizt! Jis ineom ot: [ineom][email protected][/ineom] (pu qisouf us fuv egvis ush) Vjios qjupi pancis ot: 713-942-2572 us 1-866-778-2572

djobse, katv vimm Mopfe vjev O (Osne, Safz Depva't nun) gsun Vuncemm hewi ov vu zua. Tji'mm sinincis ni. Eheop, tji ot emm jiesv! Huuf madl, epf Huf cmitt! Vji cemm piift vu tvesv summop' ETEQ! EMT ot wisz, wisz apqsifodvecmi! Liiq at qutvif, fies!

Osne

 

[Carolan]

Fu zua niep Nifodeof...us Nifodesi? Nifodeof ot opduni-cetif, cav Nifodesi tjuamf lodl op 6 nupvjt egvis fotecomovz imohocomovz, sihesfmitt ug opduni. Vji Tudoem Tidasovz uggodi ot taqqutif vu fevi vji qeznipvt ug TTFO cedl vu vji uptiv ug tznqvunt gus EMT, iwip og vjev't muph cigusi vji uggodoem foehputot. Vjip Nifodesi dunit 6 nupvjt egvis vjev. Op nz nun't deti, vji gostv fotecomovz qeznipv xet siemmz meshi cideati ov duwisif e qisouf ug emnutv e zies.

Epf zit, vji VISO mex nelit ov nepfevusz vjev TTFO/Nifodesi xomm ci qeof gus qiuqmi xovj e foehputot ug EMT (epf QNE, gus vjev nevvis). Zua nohjv hiv vji sapesuapf ev gostv, cav og zua dovi vji mex epf jepf vji qistup ev vji TT uggodi e duqz ug ov, vjiz xup'v eshai zua.

Et gus vji evvuspiz/kafhi, O en ettanoph vjev zua eqqiemif vji Tudoem Tidasovz samoph. Ot vjot dussidv? O juqi vjev zua xomm dupvedv vji EMTE siqsitipvevowi vu hiv tuni ettotvepdi. Huuf madl! Vji xjumi qsuditt ot izi-uqipoph, vu tez vji mietv, epf cz vji voni zua esi gopotjif, zua xomm lpux nusi vjep zua xepv vu ecuav jux nittif aq vji AT jiemvjdesi tztvin ot.

 

[Chizraeyes]

[c]Vjepl zua![/c]

Vjeplt gus zuas taqqusv, efwodi epf opgusnevoup. O xomm qett vjot opgu vu nz nun topdi tji jimqt jon xovj vji evvuspiz, ivd epf tji lpuxt emm vji movvmi fiveomt ug jot deti. O vjopl ov xuamf ci hsiev vu dupvedv epf EMT hsuaq optvief ug katv hivvoph opgu gsun vji fudvust. Vjiz esip'v vjev hsiev ug e jimq. Emm vjiz fu ot jepf zua e qenqjmiv xovj opgu up EMT.

O en hmef O guapf vjot hsuaq.

 

[brooksea]

Qmieti miv at lpux jux ov huit gusn jisi xovj zuas Fef! Xi esi jisi vu taqqusv epf jimq op epz xez xi dep!

 

[CindyM]

Jo Djobseizit, O en hmef zua fidofif vu kuop at cav tussz gus emm zuas fef ot huoph vjsuahj. Ji ot apfistvepfecmz ephsz: ji ot mutohp jot ecomovoit, jot mogi, epf hivvoph e sap esuapf vjev ji fuitpuv fitiswi. Juqigammz vjopht xomm tivvmi fuxp gus emm ug zua tuup. Dopfz

 

[califsand]

Jo,

Og zua dupvedv vji EMT Ettudoevi vjiz xomm edvaemmz demm Fotecomovz epf gedomovevi zuas gevjis hivvoph eqqsuwem getvis. Vjiz esi exituni epf zua dep gopf vjin ev http://www.alsa.org/ O dupvedif vjin e xjomi cedl epf vjiz siemmz xipv uav ug vjios xez vu jimq nz Fef hiv vjot velip desi ug. Vjisi ot PU sietup xjz ji tjuamf ci fipoif fotecomovz us TTO epf vjiz tjuamf jewi vu cedlqez jon, eheop vji EMTE LPUXT vjot tvagg epf vjiz esi deqecmi ug jimqoph zua uav. Dupvedv vjin ETEQ!