pfd161
Member
- Joined
- Dec 31, 2018
- Messages
- 13
- Reason
- CALS
- Diagnosis
- 01/2019
- Country
- US
- State
- ME
- City
- Sanford
First off, thanks to everyone on these forums. I have been visiting a bit as I'm quite convinced my girlfriend of 10 years has developed this terrible disease.
A year ago today we were on our snowmobiles in northern Maine... it seems impossible that we are where we are right now.
Sharon is almost 50. Been healthy and active her entire life. Her family is healthy with her mom and dad are well into their 80's.
Her symptoms started in May/June. She had some falls, which has never happened, and has progressively deteriorated ever since. Her most significant symptom seems to be weakness and slurred speech. She is being worked up by a neurologist and so far everything has come back negative, including MRI brain and C-Spine, Lumbar Puncture, and a million lab tests.
Today, she has an MRI of her Thoracic Spine, and on January 11th she has a NCS scheduled. They have not scheduled an EMG yet.
She walks slowly, and talks slowly as she is embarrassed buy it all. Her balance is terrible. She fell at work last week with her foot getting caught in the rug and hit her head on a door jamb, breaking her glasses and causing a big hematoma on her head. She also fell on the ice a week ago...breaking her left ankle. She is casted and non-weight bearing for 4-6 weeks which i think is good as i'm not thinking going to work has been good for her.
I believe she has lost 20 lbs in the last 6 months. She cries daily. It leaves me feeling so helpless. also, she is having difficulty swallowing pills now.
Her neurologist seems to think it's some for of MS, he has not mentioned ALS to her but she knows that it's a possibility. We don't discuss that...I think it's best to wait until she is diagnosed .
I know my thoughts are rather scattered. I love this woman and want her to be well. I myself am a Respiratory Therapist and Paramedic so I think that gives me a "worst case scenario" view of things. I'm just lost here....
Does this sound like a typical presentation?
thanks for reading this...
Dennis
A year ago today we were on our snowmobiles in northern Maine... it seems impossible that we are where we are right now.
Sharon is almost 50. Been healthy and active her entire life. Her family is healthy with her mom and dad are well into their 80's.
Her symptoms started in May/June. She had some falls, which has never happened, and has progressively deteriorated ever since. Her most significant symptom seems to be weakness and slurred speech. She is being worked up by a neurologist and so far everything has come back negative, including MRI brain and C-Spine, Lumbar Puncture, and a million lab tests.
Today, she has an MRI of her Thoracic Spine, and on January 11th she has a NCS scheduled. They have not scheduled an EMG yet.
She walks slowly, and talks slowly as she is embarrassed buy it all. Her balance is terrible. She fell at work last week with her foot getting caught in the rug and hit her head on a door jamb, breaking her glasses and causing a big hematoma on her head. She also fell on the ice a week ago...breaking her left ankle. She is casted and non-weight bearing for 4-6 weeks which i think is good as i'm not thinking going to work has been good for her.
I believe she has lost 20 lbs in the last 6 months. She cries daily. It leaves me feeling so helpless. also, she is having difficulty swallowing pills now.
Her neurologist seems to think it's some for of MS, he has not mentioned ALS to her but she knows that it's a possibility. We don't discuss that...I think it's best to wait until she is diagnosed .
I know my thoughts are rather scattered. I love this woman and want her to be well. I myself am a Respiratory Therapist and Paramedic so I think that gives me a "worst case scenario" view of things. I'm just lost here....
Does this sound like a typical presentation?
thanks for reading this...
Dennis