- Jul 27, 2016
I was my sister's caregiver who had ALS. I am a retired nurse. She died after having it 11/2 years. She passed away Feb. 2!016 and I had been diagnosed with it in January 2016. I denied my symptoms for three months, finally my family had me go to a neurologist . My symptoms were trouble speeching and swallowing. I was first diagnosed with PLS. I was sent to an ALS specialist and he diagnosed ALS due to me also having hyperactive reflexes. I already have a tube. In the last few weeks I have decreased my oral intake mainly using gtube. I had been living with my sister and brother-in-law, but after her death my daughter insisted that I move in with her. My family is a blessing! I really miss eating and I find myself avoiding talking by texting because it takes me a long time to text what I want to say. Grateful for this forum.