Mmn?
Hey mamaoftwo,
Did they ever consider MMN? It stands for multifocal motor neuropathy. T's doctor was hoping that was what T had, but it turned out to not be true in her case. MMN is treatable, and is often misdiagnosed as ALS. Catching it early is key because the damage it does cannot be fixed, but it can be stopped from doing further damage. Her neuro had T do an IVIG treatment, which is the typical treatment for MMN. Some people only have to do it once, others might have to do it many times, but at least it has a treatment. Please read about it if you can, I found a lot of stuff online about it, and was hopeful that it was what T had. The symptoms were twitching and muscle atrophy, I can't remember all the details because it was over a year ago that I was reading about it. I hope for Samantha that MMN is the problem.
God bless,
Pam