Salivary Glands Botox Shot

[marilyn hoffman]

I am Bulbar Onset ALS and I decided to get the Botox shots in my salivary glands to help with the constant drooling. 2 days later, I could not swallow at all. I called my ALS doc and they set me up for an emergency feeding tube. 2 days after that I was in the hospital with pneumonia. Finally home after 4 days and trying to adjust to the feeding tube. Not so sure I would recommend the Botox shots to anyone!

 

[ShiftKicker]

Oh no! That's really awful. I am so sorry that happened- and for the unexpected need for a feeding tube. That must have been a frightening ordeal.

 

[soonerwife]

Thanks for sharing your experience. We planned for my PALS to get them but changed our mind since his progression sped up.

 

[affected]

it is really a last resort because we need saliva! I'm so very sorry this happened, thank you for putting it here so others can think about the possible issues.

 

[Twitcherama]

My neurologist just recommended that I get botox shots for the saliva buildup. I'm already on a feeding tube, so swallowing isn't a concern, but pneumonia certainly is! Any idea why you came down with it? Was it related to the botox injections?

 

[SanDiegoSue]

There is a bulbar-onset ALS patient with a blog who talks about her excess saliva and what she has tried to control it. See: alteringlifespections.com