chrismontreal
New member
- Joined
- Jan 26, 2018
- Messages
- 9
- Reason
- Learn about ALS
- Country
- CA
- State
- qc
- City
- montreal
Hi
First i would let you know english is not my first language.
I read a lot of your post like everyday everytime and i totally support you.
My story is
1- in septemver i had a lots of burning calves and when i watched at them i can saw and feel the fasciculations only in them for 1 month.I went to a neuro in october who did a emg on my calves,my thight,my back,shoulders and cervical he found some fasics but told me thats it.no diagnostics
2-in november i saw another one neuro who also did emg on calves thight bicept hand 4 limbs and said you have just some fasics.
3-at this time near mid november i was really bad sur about the desease.my symptoms were lot of weight of loss 20 pouds in 3 months,very but really very tired all day,feeling out of breath a little.I known i did nothing all day long except crying so everybody told me it s normal to lose muscle and weight if i do nothing.
4-in middle december i saw a als specialist and he did a emg but only 1 limbs and cervical and tongue for bulbar found nothing.she said 99% nothing but with one limb and rongue thats it...
5-after that i found i have somerhing in my rhroat so i went to a ENT and she said i have a salivar stasis so that why i think i have something in my throat she said it s mucus drop from my nose another symptom.
6-saw another nero who did an emg and ask for irm who is ok so send me to his collegue the neuromuscular one.
7-i saw another nero a muscular one3 weeks ago he and the als specialist told me i have no atrophy just some asymetry and did an emg on 2 limbs my back my tongue and told me he saw the fasics but that is it nothing else.But what s ro see me in 3 weeks to reassure me.
But it does not reassure at all.
I am scared with all these symptoms about bulbar to resume i have fasics 24/7 in my calves not a sec wothout plus some off them during the day in back chest abdomen stomac arm....i lost 20 pound and had 16 back with eating junk food really tired every day but really i do nothing and be tired plus the salivary stasis and i just found i have a lots of dry skin patches and found on the forum it s a symptom.
just to let you known i can drink water and food no wrong tube but sense it like i have to reswallow and it s ok and feeling rongue is tired when i speak and have to swallow saliva.
Sorry for the long story and i m not asking for diagnos but your help if you want to.
what do you think about all of my story.
ps i bad all blood test done and irm lombar sacrum and dorsal.
Rhank you. Chris
First i would let you know english is not my first language.
I read a lot of your post like everyday everytime and i totally support you.
My story is
1- in septemver i had a lots of burning calves and when i watched at them i can saw and feel the fasciculations only in them for 1 month.I went to a neuro in october who did a emg on my calves,my thight,my back,shoulders and cervical he found some fasics but told me thats it.no diagnostics
2-in november i saw another one neuro who also did emg on calves thight bicept hand 4 limbs and said you have just some fasics.
3-at this time near mid november i was really bad sur about the desease.my symptoms were lot of weight of loss 20 pouds in 3 months,very but really very tired all day,feeling out of breath a little.I known i did nothing all day long except crying so everybody told me it s normal to lose muscle and weight if i do nothing.
4-in middle december i saw a als specialist and he did a emg but only 1 limbs and cervical and tongue for bulbar found nothing.she said 99% nothing but with one limb and rongue thats it...
5-after that i found i have somerhing in my rhroat so i went to a ENT and she said i have a salivar stasis so that why i think i have something in my throat she said it s mucus drop from my nose another symptom.
6-saw another nero who did an emg and ask for irm who is ok so send me to his collegue the neuromuscular one.
7-i saw another nero a muscular one3 weeks ago he and the als specialist told me i have no atrophy just some asymetry and did an emg on 2 limbs my back my tongue and told me he saw the fasics but that is it nothing else.But what s ro see me in 3 weeks to reassure me.
But it does not reassure at all.
I am scared with all these symptoms about bulbar to resume i have fasics 24/7 in my calves not a sec wothout plus some off them during the day in back chest abdomen stomac arm....i lost 20 pound and had 16 back with eating junk food really tired every day but really i do nothing and be tired plus the salivary stasis and i just found i have a lots of dry skin patches and found on the forum it s a symptom.
just to let you known i can drink water and food no wrong tube but sense it like i have to reswallow and it s ok and feeling rongue is tired when i speak and have to swallow saliva.
Sorry for the long story and i m not asking for diagnos but your help if you want to.
what do you think about all of my story.
ps i bad all blood test done and irm lombar sacrum and dorsal.
Rhank you. Chris