• Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here

Ruth Karr

Clkarr

New member
Joined
Jan 13, 2020
Messages
1
Reason
Lost a loved one
Diagnosis
05/2010
Country
US
State
AL
City
Huntsville
I lost my mom today, I have been her care giver for 7 years, of watching this disease steal from her every thing was and all joy she could find in life, at the very end all she could do is lay in bed and breath with help from a trillogy. Ruth Karr, deserved a hell of a lot more than this, she could not express gratitude or happiness I have been on a 3 day watch giving mom her morphine every two hrs. Until this morning.. watching the pulse ox,.. reaching for the cough assist at 2am! Watching the trillogy mask mar and start sores on her nose, To all care givers! Yes you are doing the right thing for you loved ones! I know what's it's like to watch and stand helpless.. trying to address one weakness issue after another one,, im so mad and upset words are failing me.. and people tell me they know just what I was having to deal with.. unless you ave been an als care giver.. no,, no you don't you never will. you really have no idea... sorry for the rant the last 3 days have left me shattered. Some first post.. huh..



I am really not this big a jerk..
But last week un did me
 

ARCG

Distinguished member
Joined
Oct 12, 2016
Messages
132
Reason
CALS
Diagnosis
1/2015
Country
US
State
TX
City
Houston
My heart goes out to you. You are absolutely right, no one has any idea what this is like. So sorry for your loss. Your mom had a wonderful daughter. Rant all you want.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,934
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
City
Seattle
I'm very sorry, C. Your mom was lucky beyond words to have you at her side.

Best,
Laurie
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
3,091
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
So sorry for your loss.
 

Jrzygrl

Senior member
Joined
Feb 14, 2017
Messages
585
Reason
Lost a loved one
Diagnosis
08/2014
Country
US
State
NJ
City
X
I am so sorry for your loss. And for the years of continual losses you have already endured. Agreed - no one knows what it's like.

Sending huge hugs and wishing you peace.
 

vltsra

Distinguished member
Joined
Nov 12, 2015
Messages
366
Reason
CALS
Diagnosis
11/2015
Country
US
State
CA
City
San Diego
So sorry for your loss. Your mom was so lucky to have you as her caregiver. This illness is just shattering. I wish both you and your mom peace.

V
 

Nuts

Forum Supporter
Extremely helpful member
Joined
Feb 23, 2014
Messages
2,529
Reason
Lost a loved one
Diagnosis
01/2014
Country
US
State
NC
City
Littleton
My heart is with you...I am so sorry. Please know that she is now laughing and kicking up her heals. She received the greatest blessing a person can--you. You gave her love and care when she needed it in a way she never expected to, and that love will stay with both of you. This disease has a way of either allowing you to see the joy in the smallest things in life or continuing to take and take even after your caregiving days are over. Please be kind to yourself. It takes a long time for caregivers to recover from ALS, and I'm sure your mother wants that recovery for you. Sending you peace and love.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
8,137
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
I am so very sorry. You did an awesome job. she is now free and you, although forever changed ,will heal. I lost my mother and sister to this ( as well as others). I remember feeling forever broken but eventually it starts to get a little better.
hugs
 

pittsburghgal

Senior member
Joined
Jan 7, 2016
Messages
523
Reason
CALS
Diagnosis
11/2011
Country
US
State
PA
City
Pittsburgh
I am so sorry for your loss of your mom. I am sure she was proud of your ability to care for her for such a long time. I truly understand how difficult that is. You are in my thoughts and prayers.

Sharon
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,588
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
I'm so sorry for your loss. Your mom was so blessed to have you.
 

beauty4everyone

Distinguished member
Joined
Jul 5, 2018
Messages
181
Reason
PALS
Diagnosis
04/2018
Country
US
State
GA
City
Someplace
Your loving care was a comfort and blessing to your dear mother. May only happy memories of your loving times together remain to bring you peace. With deepest sympathy your loss. B.
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