ShellyRenee
Active member
- Joined
- Jun 23, 2005
- Messages
- 30
Good evening to all,
I just wanted to give all a thank you for the kind words you sent my direction. Feeling sad and blue is a true bummer but when there are others out there that say hang in there and we are thinking of you kinda lifts one up. So BIG BIG thanks! :wink:
For Pat, I would love to take you up on a phone chat. I will email you with my telephone number. Thank you for opening that door of communication.
For Al, I do agree with you of going to these support meetings but unfortunately my family (children) don't understand. I have a 17 yr. old daughter, need I say anymore? Also a 8 yr. old little boy who is my million dollar man who has been through 3 open heart surgeries and he is developementally delayed. Finally, a 4 yr. old little girl who is full of being a little girl. It's like a juggling act somedays. Being pulled this way and then that way it's no wonder I feel like rubber somedays. :lol: My sanity time is when the children (younger two) go to bed @ 8:00, ahh some days I long for their bedtime. :wink:
Now for "Rude and Heartless", today I finally had enough. The Hospice nurse who was assigned to be moms case worker/nurse she is no longer. She has seemed to me to be Rude and Heartless, but was it me being too sensitive? After this morning she came out to the house and treated us (dad and I) as if we were stupid and we were taking up HER precious time. Bottom line I AM MOMS ADVOCATE! Treat mom as if she was her mom. Now I am not asking her to sob all over her but when we have a question answer us with kindness and see if we understand. She was like the wicked mean teacher we all feared, the one who told you once how to do something and don't you dare ask again. Yes we did ask for Hospice but we did not ask for Mom to be dealt this hand, so we must do the best we can. Mom would not really say anything about this nurse. If I'd ask her what her feelings are she would just shrug her shoulders and say "Whatever". So it's over, no more dreading the nurse to come out. Kinda a strtange, when it was time for her to leave she would change her manners and say "would it be ok if I came out next week?" Not anymore.
The site for moms feeding tube is infected, no way huh? Just another hurdle and we will get over this one. I said to mom the yesterday, "maybe in a few days you will feel comfortable with doing your own tube feedings" she muttered out to me that her fingers are too weak to flip open the cap. Ahh, another chip away at my heart. So I will continue to make a couple trips to their house to do this for her. She will let dad do it only if I can not make it over. Today before I left dad came in from outside and said it was time for her PulmoCare and antibiotic she would not let him and insisted that I do it before leaving. That's ok with me because I look at it as she is getting more comfortable with the tube.
Does this roller coaster ever slow down or tapper off? Seems like things are moving real fast.
Time for me to turn in myself. Big day tomorrow as me and Eden (my youngest) are going on a field trip with her preschool class to the pumpkin farm. Yea, a slight change of the routine, I am excited. No worry Dad is covering for me. :wink:
Good night and sweet dreams,
Shelly
I just wanted to give all a thank you for the kind words you sent my direction. Feeling sad and blue is a true bummer but when there are others out there that say hang in there and we are thinking of you kinda lifts one up. So BIG BIG thanks! :wink:
For Pat, I would love to take you up on a phone chat. I will email you with my telephone number. Thank you for opening that door of communication.
For Al, I do agree with you of going to these support meetings but unfortunately my family (children) don't understand. I have a 17 yr. old daughter, need I say anymore? Also a 8 yr. old little boy who is my million dollar man who has been through 3 open heart surgeries and he is developementally delayed. Finally, a 4 yr. old little girl who is full of being a little girl. It's like a juggling act somedays. Being pulled this way and then that way it's no wonder I feel like rubber somedays. :lol: My sanity time is when the children (younger two) go to bed @ 8:00, ahh some days I long for their bedtime. :wink:
Now for "Rude and Heartless", today I finally had enough. The Hospice nurse who was assigned to be moms case worker/nurse she is no longer. She has seemed to me to be Rude and Heartless, but was it me being too sensitive? After this morning she came out to the house and treated us (dad and I) as if we were stupid and we were taking up HER precious time. Bottom line I AM MOMS ADVOCATE! Treat mom as if she was her mom. Now I am not asking her to sob all over her but when we have a question answer us with kindness and see if we understand. She was like the wicked mean teacher we all feared, the one who told you once how to do something and don't you dare ask again. Yes we did ask for Hospice but we did not ask for Mom to be dealt this hand, so we must do the best we can. Mom would not really say anything about this nurse. If I'd ask her what her feelings are she would just shrug her shoulders and say "Whatever". So it's over, no more dreading the nurse to come out. Kinda a strtange, when it was time for her to leave she would change her manners and say "would it be ok if I came out next week?" Not anymore.
The site for moms feeding tube is infected, no way huh? Just another hurdle and we will get over this one. I said to mom the yesterday, "maybe in a few days you will feel comfortable with doing your own tube feedings" she muttered out to me that her fingers are too weak to flip open the cap. Ahh, another chip away at my heart. So I will continue to make a couple trips to their house to do this for her. She will let dad do it only if I can not make it over. Today before I left dad came in from outside and said it was time for her PulmoCare and antibiotic she would not let him and insisted that I do it before leaving. That's ok with me because I look at it as she is getting more comfortable with the tube.
Does this roller coaster ever slow down or tapper off? Seems like things are moving real fast.
Time for me to turn in myself. Big day tomorrow as me and Eden (my youngest) are going on a field trip with her preschool class to the pumpkin farm. Yea, a slight change of the routine, I am excited. No worry Dad is covering for me. :wink:
Good night and sweet dreams,
Shelly