Grumpy'sWife
Distinguished member
- Joined
- Aug 18, 2014
- Messages
- 153
- Reason
- Lost a loved one
- Diagnosis
- 07/2014
- Country
- US
- State
- Ohio
- City
- Southern
Unfortunately Grumpy had a fall on Wednesday night. Thankfully nothing broken or strained according to the doctor. He has some pain in his right calf but nothing he will take meds for.
Honestly I am afraid. He seems to be losing all the strength in his right leg. He has so much atrophy on the left side of his body and I find myself staring at the right trying to gauge it as well. We are being super careful with transfers and he is spending more time in bed.
I think the fall made me crazy. The OT showed up the next day (no appointment, never calls, just shows up) and started telling him the next step was weight lifting for his arms and strengthening exercises, WTH? It wears him down when I do the ROM exercises on his left side. I said no, no weights. She said I am the one with the degree. My reply was "and I am the one throwing you out of the house". I requested a new OT so we shall see.
We meet with the VA on Tuesday and Grump wants a hospital bed. He can't turn himself at night anymore and can't get comfortable. Last night from 10 pm to 8 am, we turned 11 times, once with just 15 minutes in between. I think I will ask for a lift too. I don't know what else to do.
He also decided that he would get a feeding tube....but no vent. Is it wrong that I am thankful for that? Does that me a bad person, a bad wife? The kids are split 50/50 on it and the ones that want him to vent think I should convince him to do it. How can I do that?
Thank you for letting me vent and cry on your shoulders. Watching how fast this damn disease has taken control has me scared and feeling so alone.
~Kaye
Honestly I am afraid. He seems to be losing all the strength in his right leg. He has so much atrophy on the left side of his body and I find myself staring at the right trying to gauge it as well. We are being super careful with transfers and he is spending more time in bed.
I think the fall made me crazy. The OT showed up the next day (no appointment, never calls, just shows up) and started telling him the next step was weight lifting for his arms and strengthening exercises, WTH? It wears him down when I do the ROM exercises on his left side. I said no, no weights. She said I am the one with the degree. My reply was "and I am the one throwing you out of the house". I requested a new OT so we shall see.
We meet with the VA on Tuesday and Grump wants a hospital bed. He can't turn himself at night anymore and can't get comfortable. Last night from 10 pm to 8 am, we turned 11 times, once with just 15 minutes in between. I think I will ask for a lift too. I don't know what else to do.
He also decided that he would get a feeding tube....but no vent. Is it wrong that I am thankful for that? Does that me a bad person, a bad wife? The kids are split 50/50 on it and the ones that want him to vent think I should convince him to do it. How can I do that?
Thank you for letting me vent and cry on your shoulders. Watching how fast this damn disease has taken control has me scared and feeling so alone.
~Kaye