tripete
Very helpful member
- Joined
- Dec 5, 2014
- Messages
- 1,002
- Reason
- PALS
- Diagnosis
- 12/2014
- Country
- US
- State
- PA
- City
- Lancaster
Today was another clinic visit in Hershey, PA. It was a rough day. My breathing numbers were so far in the tank that they have set up for HOSPICE to visit me Friday. My strength well they recommended that I move to the power wheelchair full time (I did have two falls this month) and that I get a Hoyer Lift. Then to top it all off my Dr told my wife that "there was no since for someone gone as far as I am to take Radicava".
This last statement crushed her and she stormed out. I don't know that we will ever go back - she just cant handle the "no hope" attitude. The other thing that upset her was that they keep trying to push medications on me for pain, cramping etc.. Even when I have consistently said that I don't want them.
After the poor breathing results all but one of the specialist who saw me asked "What can we do for you?" The clear implication was that because I will not do pain meds, feeding tube, or ventilation that they had done what they could and were done with me.
I asked if I could get a folding/portable Hoyer Lift and was told that medicare will not cover a folding one is that true?
What lift is recommended that Medicare covers?
With Hospice coming Friday what questions should I ask?
Thanks for your help and listening.
This last statement crushed her and she stormed out. I don't know that we will ever go back - she just cant handle the "no hope" attitude. The other thing that upset her was that they keep trying to push medications on me for pain, cramping etc.. Even when I have consistently said that I don't want them.
After the poor breathing results all but one of the specialist who saw me asked "What can we do for you?" The clear implication was that because I will not do pain meds, feeding tube, or ventilation that they had done what they could and were done with me.
I asked if I could get a folding/portable Hoyer Lift and was told that medicare will not cover a folding one is that true?
What lift is recommended that Medicare covers?
With Hospice coming Friday what questions should I ask?
Thanks for your help and listening.