rolark
Member
- Joined
- Apr 20, 2006
- Messages
- 27
- Reason
- Loved one DX
- Diagnosis
- 03/2006
- Country
- CA
- State
- Ontario
- City
- Sharon
I am relitively new to the whole - ALS clinic vs family doctor relationship.
My wife was diagnosed 6 months ago and at that time we were introduced to the ALS Clinic. Our impression was that since our family doctor knew very little about ALS and the Clinic specailzes in ALS that the clinic would be our new primary medical sourse.
The problem is - the clinic doesn't seem to be available to us for anything but quarterly visits. In Gail's case - her disease is progressing at a rate that can not be serviced by one appointment every 3 - 4 months. I read about possible other alternitives to baclofen for the jumping muscles - but can't get the problem fixed until November! Sleeping 2 -3 hours a night until November doesn't seem like a very good option.
Would you please share who you use as a medical team - or do you just rely on a visit to the ALS clinic every 4 months?
My wife was diagnosed 6 months ago and at that time we were introduced to the ALS Clinic. Our impression was that since our family doctor knew very little about ALS and the Clinic specailzes in ALS that the clinic would be our new primary medical sourse.
The problem is - the clinic doesn't seem to be available to us for anything but quarterly visits. In Gail's case - her disease is progressing at a rate that can not be serviced by one appointment every 3 - 4 months. I read about possible other alternitives to baclofen for the jumping muscles - but can't get the problem fixed until November! Sleeping 2 -3 hours a night until November doesn't seem like a very good option.
Would you please share who you use as a medical team - or do you just rely on a visit to the ALS clinic every 4 months?