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amywiller

New member
Joined
Nov 12, 2007
Messages
5
Reason
Loved one DX
Country
US
State
MI
City
St. Joseph
Hello all,
what a great site, i am thankful I found you. My dad was diagnosed w/ ALS in August but says he couldn't grip his golf clubs correctly two years ago. He is one of 16 children and three of my aunts (his sisters) have passed from ALS already. I see from two sides how this will probably go. I am horrified that my father has this even though given the family history maybe i don't have a right to be surprised. Also, I am a speech pathologist so I see not only the family/caregiver view but also the clinical one. I am grateful that I have some specific skills that can help my dad in addition to being his devoted daughter, but the distance between us (I am 100 miles away) stresses me. Obviously when the time comes I will take a leave from my job to be with him, but my family is really relying on me to be strong and in control and in the dark at night I am petrified as to whether i will be able to keep it together for everyone. my dad has strongly indicated he wants nothing invasive (no tube or vent) and he will stand by his decision, he is a man of strong opinions and convictions and obviously we will respect his decisions, but as this year draws to a close I am both dreading and loving what the next year will bring. What I mean is, this disease takes away so much but at the same time it draws out the wonderful- all the love, care, concern of family members, friends and even strangers really renews my faith in the goodness of this world. I am so thankful that I have found a place to share my thoughts with people who will understand, as not even the therapists I work with have necessarily seen ALS firsthand.
Take care everyone, my thoughts are with you all.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi Amy. It's people like you that make this a great site.
AL.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hi Amy, Thank you for joining us. Sorry to hear about your Dad. Cordially, Cindy
 

brooksea

Legendary member
Joined
Sep 27, 2006
Messages
5,171
Reason
Other
Country
HM
Hi Amy,

I'm sure you will have a lot to offer your Dad when the time comes. Sorry he has ALS. You will be of help to those on this site also!
 
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