Well, first of all I would love to say HI DEB! It is so nice to finally hear from you hun! You have a wonderful husband, we just love him. Now, Al, not a good sentence for a response. I know you dont type as much as you used to, but Jeff is correct in the analogy that Monosodium Glutamate build up in the brain is what happens with PALS. They just have not figured out why. After all of my research as well, the FDA most definitely cannot be trusted. They have flat out ignored the warnings and evidence of what processed MSG does to the body. It is in so many things in so many different forms it is ridiculous. All it does is make the food taste better they say. There is no proof that processed MSG and natural Glutamate can cross the blood brain barrier, however it wouldn't take a rocket scientist to figure out that avoiding as much as you can of it would be at the very least prudent. If you consume tons of it in daily food intake, and you have ALS....why would you do that when it is a known fact that the glutamate build up in the brain is what causes the neurons to die? It just makes sense to avoid the stuff as much as possible. As far as Rizole/Rilutek - I think the jury is still out on that one. I believe that there are literally different strains of ALS and that is why it is so hard to find a cure. Much like AIDS. Same problem. That is why everyone reacts differently to different methods, detoxing, diets, and medications. If you take Rilutek and it makes you feel worse, my vote is to get off of it! It is all about quality of life and not quantity at this point.
My two cents.
Hugs ALL!
Kari
