Hi Ruby,
My ALS specialist was formally of the opinion that the benefits of rilutek did not warrant prescribing it. Now after reviewing the latest case studies which suggest the drug may have more benefits than previously thought - he is recommending that his ALS patients take it.
Now - will taking it make any difference in your case? Who knows? I think the effectiveness is different for everyone. I've been taking it since November 2005 - and have not noticed any perceptable difference and have had noticeable progression in that time.
Luckily I have drug coverage - so the cost is not an issue for me. Although, I understand that for those who don't have drug coverage and cannot afford the drug, arrangements can be made.
Personnaly, if I did not have drug coverage, I would not be taking Rilutek.
If you do have drug coverage, I would say go for it.
Good luck.
Richard