Rilutek Question

[Lkaibel]

My husband is going to check in with his Dr, about some facial redness he is experiencing. Honestly, it looks sort of like Rocasea and he has some tendency towards that too.

He is concerned it may be related to the Rilutek he is taking. I was wondering if anyone else has seen this develop with Rilutek use? Rash is mentioned as a possible side effect - but it's redness, not a rash per se. It is not "hives" either, and he has had it two weeks, so I am not concerned amount a dangerous reaction/allergy at this time anyway.

He is concerned that he may be told to stop taking Rilutek. I am not as concerned because frankly I thing the drug provides limited and questionable very short term benefit.

As I said, we are checking in with the Dr., just wondering if anyone has had a similar experience. I asked a pharmacy tech and she looked at me like I was speaking a strange language and said "well we never see that drug here so I don't know". Ahh, remind me not to get an "orphan" disease. They call it "the ALS community" because we only have each other and a wee number of specialists.

 

[affected]

I haven't heard this reported but worth checking out because PALS do seem to develop lots of funny skin stuff from rashes, itchy spots, dry spots and fungal infections.

If he was prone to this redness before it may just flare up more and in different places now without the rilutek being involved, but again worth checking out I think.

Chris would often get dryish red areas on his face which he had NEVER had before ALS, and he wasn't on rilutek,