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JohnMc

Active member
Joined
Apr 12, 2008
Messages
50
Reason
PALS
Diagnosis
10/2008
Country
US
State
AZ
City
Phoenix
Hi everyone,

Last week, I saw my neurologist to get the results from lumbar puncture and MRI tests that had been done. The tests showed nothing that would indicate anything other than ALS. He told me that it is now 80% to 90% likely that I have ALS.

I was surprised when he prescribed Rilutek for me, even though I have not been diagnosed, yet.

Is this common? It makes sense the way he explained it, that most PALS have lost much mobility by the time they are officially diagnosed, and it may be too late for much of the benefit of Rilutek if you wait.

Are there other people out there who took this drug before DX?

John
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
John there are quite a few that take it before official diagnosed. because it has been found to be more effective the earlier you start it.
AL.
 

Tom~Iowa

New member
Joined
Jun 7, 2008
Messages
3
Reason
PALS
Diagnosis
05/1998
Country
US
State
Iowa
City
Dubuque
John,
Thats was good, I was told to go home and get ready to die.(get your affairs in order) That was 10 years ago.

Tom,
 
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