laurel
Very helpful member
- Joined
- Jul 19, 2007
- Messages
- 1,436
- Reason
- DX UMND/PLS
- Diagnosis
- 07/2007
- Country
- CA
- State
- BC
- City
- Vancouver
Hello Everyone,
I have just joined your forum, and I am seeking some advice. My 59 yr. old husband was seen by a neurologist 2 years ago and was diagnosed via EMG and MRI to have two impingements in his right arm. He was referred to a surgeon. In 2005 he had surgery of his rt. arm in two places to free the impingements. He has lost more use of the arm since the surgery and now the muscles in his arm are atrophying and his arm is visably shrunken and he is losing use of his hand more day by day.
We decided to seek a second opinion from another surgeon in May of this year. He reviewed my husband's MRI and surgical report and said he feels that my husband never had symptoms of carpal tunnel and that he needed to return to original neurologist.
We did this and it was a frustrating experience. The neurologist seemed offended that the surgeon had queried his original diagnosis of carpal tunnel and a second impingement below the elbow. I asked about the possibility of it being a motor neuron disease. He was very sarcastic and said, "what are you worried about Lou Gehrig's Disease? Have you been looking on the internet?" I said that I had because I was puzzled with my husband's shrinking arm and increasing loss of use of it.
He ordered 3 MRI's--brain, cervical spine, and brachial area of the shoulder. We returned for the results a few days ago. He said the MRI's were negative for any tumours or impingements. He said he doesn't have a clue what is wrong with my husband, but all he can think of is a rare neuromuscular disease. He has now put in a referral to another neurologist who is a specialist in neuromuscular diseases. He says he doesn't "think" it is ALS because my husband has symptoms of atrophy in only one arm and that other things would have surfaced by now in other parts of his body.
Can anyone offer any imput, advice, recommendations please.
I have just joined your forum, and I am seeking some advice. My 59 yr. old husband was seen by a neurologist 2 years ago and was diagnosed via EMG and MRI to have two impingements in his right arm. He was referred to a surgeon. In 2005 he had surgery of his rt. arm in two places to free the impingements. He has lost more use of the arm since the surgery and now the muscles in his arm are atrophying and his arm is visably shrunken and he is losing use of his hand more day by day.
We decided to seek a second opinion from another surgeon in May of this year. He reviewed my husband's MRI and surgical report and said he feels that my husband never had symptoms of carpal tunnel and that he needed to return to original neurologist.
We did this and it was a frustrating experience. The neurologist seemed offended that the surgeon had queried his original diagnosis of carpal tunnel and a second impingement below the elbow. I asked about the possibility of it being a motor neuron disease. He was very sarcastic and said, "what are you worried about Lou Gehrig's Disease? Have you been looking on the internet?" I said that I had because I was puzzled with my husband's shrinking arm and increasing loss of use of it.
He ordered 3 MRI's--brain, cervical spine, and brachial area of the shoulder. We returned for the results a few days ago. He said the MRI's were negative for any tumours or impingements. He said he doesn't have a clue what is wrong with my husband, but all he can think of is a rare neuromuscular disease. He has now put in a referral to another neurologist who is a specialist in neuromuscular diseases. He says he doesn't "think" it is ALS because my husband has symptoms of atrophy in only one arm and that other things would have surfaced by now in other parts of his body.
Can anyone offer any imput, advice, recommendations please.