RBbutterfly
New member
- Joined
- Jul 4, 2020
- Messages
- 1
- Reason
- Loved one DX
- Diagnosis
- 06/2020
- Country
- US
- State
- NV
- City
- Las Vegas
Hello ALS Forum community!
Thank you for creating this venue connecting PALS to solutions and insight into ALS. I created this account on behalf of my beloved father Rick Brill. Our dad is the epitome of light and love, and has been shining exuberantly his entire life. He respects EVERYONE NO MATTER WHAT, and showcases a unique quality of joy and resilience. My nephew organically nicknamed him "Happy" as energy and actions speak so much louder than words!!!
We are closely monitoring the Nurown Stem Cell Therapy Clinical Trial with hopes that the participants' results are a success. Dad is open to all remedies but leans toward natural, non-pharma solutions.
Pops was diagnosed a couple weeks ago with ALS, but has had symptoms for around 2 years. We are looking for support in a few areas and would greatly appreciate any feedback you may have
Here are some of the major obstacles pops is going through where we need support:
Nausea/ Diet/Digestion
- He has had intermittent nausea spells the past few weeks, but has been experiencing it non-stop the last 3 days. He is currently taking Zofran which is an anti-nausea medicine, and we have upped the dosage with hopes of mitigating the nausea. He is taking a type that dissolves, and will be getting a patch to try soon. Has anyone here experienced nausea with ALS?
- Dad has GERD/Acid Reflux and we don't know if or how they relate to ALS?
- Our dad has lost a significant amount of weight and we are trying to figure out ways to beef him up with good proteins and nutrients. I came across Kate Farms Peptide 1.5 ((THANKS TO THIS FORUM!)) and we just ordered him some. Pops doesn't want to take a appetite simulator or steroid so we hope this will help.
- Are there any ALS dietitians in this forum or can someone recommend someone to help us out with this?
Thank you so much for taking the time to read this and we look forward to hearing from you!
All the best,
-Jared and the Brill family
Thank you for creating this venue connecting PALS to solutions and insight into ALS. I created this account on behalf of my beloved father Rick Brill. Our dad is the epitome of light and love, and has been shining exuberantly his entire life. He respects EVERYONE NO MATTER WHAT, and showcases a unique quality of joy and resilience. My nephew organically nicknamed him "Happy" as energy and actions speak so much louder than words!!!
We are closely monitoring the Nurown Stem Cell Therapy Clinical Trial with hopes that the participants' results are a success. Dad is open to all remedies but leans toward natural, non-pharma solutions.
Pops was diagnosed a couple weeks ago with ALS, but has had symptoms for around 2 years. We are looking for support in a few areas and would greatly appreciate any feedback you may have
Here are some of the major obstacles pops is going through where we need support:
Nausea/ Diet/Digestion
- He has had intermittent nausea spells the past few weeks, but has been experiencing it non-stop the last 3 days. He is currently taking Zofran which is an anti-nausea medicine, and we have upped the dosage with hopes of mitigating the nausea. He is taking a type that dissolves, and will be getting a patch to try soon. Has anyone here experienced nausea with ALS?
- Dad has GERD/Acid Reflux and we don't know if or how they relate to ALS?
- Our dad has lost a significant amount of weight and we are trying to figure out ways to beef him up with good proteins and nutrients. I came across Kate Farms Peptide 1.5 ((THANKS TO THIS FORUM!)) and we just ordered him some. Pops doesn't want to take a appetite simulator or steroid so we hope this will help.
- Are there any ALS dietitians in this forum or can someone recommend someone to help us out with this?
Thank you so much for taking the time to read this and we look forward to hearing from you!
All the best,
-Jared and the Brill family
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