Wilson2009
Distinguished member
- Joined
- May 4, 2017
- Messages
- 287
- Reason
- PALS
- Diagnosis
- 01/2017
- Country
- US
- State
- KS
- City
- Lenexa
About a month ago I noticed that the vision in my right eye had been reduced significantly. While parts of the field of vision were clear, the majority of the field was cloudy with the inability to distinguish any detail. Yesterday, the OD at the VA determined that I had RVO in the right eye (More info here). They are sending me to a Retinal specialist who will begin administering injections into the eye that I may need every few months for the rest of my life. I know, I know. I will finally get that 'poke in the eye with a sharp stick'. According to the OD, this is not a full-blown RVO as I have some clear vision in the eye. Rather it is a partial or 'Hemi' leak. No idea when this actually started as unless I cover my left eye, I do not notice the vision being degraded in my right eye.
Anyway, I have two questions based on what I have read about RVO on Dr. Google and what the OD explained are the classic causes of RVO.
1. Has anyone heard of a PALS developing RVO post-ALS diagnosis?
2. Has any PALS who has received Radicava had any eye issues that were caused by RVO? I ask because of the significant bruising that occurred during the last three of my 22 full cycles of Radicava. I am probably grasping at straws trying to figure out why this occurred without presenting with any of the classic causes of RVO. While I stopped 18 months ago, I sometimes feel that it is the gift that keeps on giving.
Anyway, I have two questions based on what I have read about RVO on Dr. Google and what the OD explained are the classic causes of RVO.
1. Has anyone heard of a PALS developing RVO post-ALS diagnosis?
2. Has any PALS who has received Radicava had any eye issues that were caused by RVO? I ask because of the significant bruising that occurred during the last three of my 22 full cycles of Radicava. I am probably grasping at straws trying to figure out why this occurred without presenting with any of the classic causes of RVO. While I stopped 18 months ago, I sometimes feel that it is the gift that keeps on giving.