Hello all, I am again asking for your help with some new problems my aunt has been having. She is unable to move any part of her body other than very slight movement of her head from side to side. She is also using a feeding tube which is working out very well.
My question is that she is unable to sleep for more than 15 – 20 minutes at a time at night. She needs to have her caregiver reposition her each time she wakes up. Since she is unable to speak at all, it often very difficult for us to figure out what needs moved... hands, arms, legs etc. She is using a communication device and that helps some of the time, but it seems to be getting harder for her to use it as well. I am just wondering if anyone has any suggestions on helping her to sleep more comfortably through the nights. Her husband gets no sleep and then goes to work all day, he is simply exhausted. The family often tries to be there when we can, but do to our own work schedules we are usually only available on weekends. She is often very irritable and gets frustrated very easily. I am not sure if that is due to the disease or lack of sleep... or both. Any help would be greatly appreciated.
My question is that she is unable to sleep for more than 15 – 20 minutes at a time at night. She needs to have her caregiver reposition her each time she wakes up. Since she is unable to speak at all, it often very difficult for us to figure out what needs moved... hands, arms, legs etc. She is using a communication device and that helps some of the time, but it seems to be getting harder for her to use it as well. I am just wondering if anyone has any suggestions on helping her to sleep more comfortably through the nights. Her husband gets no sleep and then goes to work all day, he is simply exhausted. The family often tries to be there when we can, but do to our own work schedules we are usually only available on weekends. She is often very irritable and gets frustrated very easily. I am not sure if that is due to the disease or lack of sleep... or both. Any help would be greatly appreciated.